Why are parents so leery of the HPV vaccine?

The first human papillomavirus (HPV) vaccine was licensed in 2006 and despite tens of millions of doses being safely administered according to experts, parents don’t seem to be any more comfortable with the vaccine today.

From USA Today:

“Concerns about safety and side effects for the human papillomavirus (HPV) vaccine — one of the newest shots recommended for adolescents — has increased among parents: 16% cited these fears as the main reason they did not have their daughters vaccinated in 2010, up from 5% in 2008, a new study finds.

“And the percentage of parents who said they did not intend to vaccinate their daughters against HPV in the next 12 months also grew, from 40% in 2008 to 41% in 2009 to 44% in 2010, even as parents reported increasing physician recommendations to get the shot, says the study in April’s Pediatrics, released online Monday.

“According to the Centers for Disease Control and Prevention, HPV vaccines offer the best protection to girls and boys who receive all three vaccine doses and have time to develop an immune response before being sexually active with another person.

“Parental anxiety over the safety of other new adolescent vaccines — the tetanus, diphtheria and pertussis booster Tdap, (and a version called Td without the pertussis portion) and the meningococcal disease shot MCV4 — did not show a similar increase.”

HPV is a group of sexually transmitted viruses passed through genital contact – most often during vaginal or anal sex but can also be spread through oral sex. The vaccine is recommended for boys and girls 11 to 12 years old.

We discussed this when the vaccine first came out. I can’t find the story because my archive doesn’t go back that far in this system, but I remember many moms saying that wanted to wait a while to see what shook out.  At the time my oldest was too young for it, and I was glad I didn’t have to make that decision then, but guess what? Now she is exactly the age they are targeting with the vaccine. So in the next year or so, we will have to make a decision about it.

So have you done it? Did you hold out? Did you give it to your son as well? Where do you stand on it now?

83 comments Add your comment

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MamaS

March 19th, 2013
5:59 am

My son will be the right age to have it in two years. Based on what I know now, I will allow his doctor to administer the series. I want to raise a responsible young man, and sexually active boys have a responsibility to do all in their power to protect their female partners from STDs, pregnancies, and HP viruses.

Jeff

March 19th, 2013
6:13 am

Why am I apparently the only one who raises an eyebrow that we are asking adults to inject BOYS with something so that will primarily benefit girls?

Would we be willing to put a chemical into the bodies of girls when the health of boys is the stated primary goal? Do we know the long term side effects? Has anyone asked? Or are we just so much on the bandwagon of doing anything under the pretext of women’s health that we don’t even think to ask what it’s doing to the future health of the men of this country?

If you want to give girls the vaccine, by all means go ahead. It’s a shame that some of you mothers care more about girls that aren’t yours than you do about boys that are.

gtmom

March 19th, 2013
6:41 am

Jeff, this vaccine is not just for boys. First off, almost every man and woman have come in contact with HPV at sometime in their life. 19,000 women will develop cancer from it (in US). 8000 men will develop cancer from it. It also causes genital warts in both men and women. There are also lots of girls who not get this vaccine for their daughters. It would be horrible for me to watch my son lose a loved one and he be the guilty party who gave this infection to that person. I have seen it happen.
My college roommate who was a virgin until she married. She developed cevical cancer in her early 30s. Her husband and her both had HPV. She had never been with another person including oral sex. She lived but had a hard fight being it was stage 3. His guilt was horrible to watch.
I will vaccinate my sons. I have no daughters. I will vaccinate them because I love them.

WTFrank

March 19th, 2013
6:56 am

“sexually active boys have a responsibility to do all in their power to protect their female partners from STDs, pregnancies, and HP viruses.” Good grief, you do know that there are plenty of women of questionable character giving STD’s to men right? Basically the modern woman bears no responsibilty if I am reading your statement correctly….

Georgia

March 19th, 2013
7:02 am

Tough issue, because it challenges our inner prunes. Immunize early and often. We are sexual beings first. Look what happened to Al Capone.

A Realist

March 19th, 2013
7:03 am

I think Jeff said it best….this is clearly another example of men’s health being largely overlooked in favor of medical issues that impact females.

Mayhem

March 19th, 2013
7:07 am

Both my daughters got the shot before they went to college. No problems at all.

Dietcokegirl

March 19th, 2013
7:12 am

HPV doesn’t only afftect women. It can affect men too… Cancer of the throat and mouth, women can get all of those plus cervical cancer, which by the way, is no walk in the park. If I had BOYS or GIRLS, I would vaccinate them in a heartbeat. I had/have HPV, the high risk kind, only because the vax wasn’t around when I was growing up, but you can be damn sure that I would have had it.

Stop making this issue into a you vs. me, its a general health issue. If you could get a vaccine for colon cancer, would you?

ATL Born and Raised

March 19th, 2013
7:18 am

As far as I know there have been no reported negative side effects from this vaccine. What’s all the fuss about? I had it myself a few years ago. It’s a painful injection, but other than that I haven’t experienced any side effects.

motherjanegoose

March 19th, 2013
7:32 am

My daughter did not get it. She has a good friend who got VERY sick from it and still has issues to this day.
Since she is 20, it is her call. She had all her other immunizations, with the exception of a flu shot this year.

Cramer

March 19th, 2013
7:32 am

This blog doesn’t address the epidemic of head & neck squamous cell carcinoma in middle aged, primarily white men caused by HPV 16 exposure. This isn’t political correctness run amok, this is a smart, very low risk way to prevent cancer in both men and women.

^ D’Souza G, Dempsey A (October 2011). “The role of HPV in head and neck cancer and review of the HPV vaccine”. Prev Med 53 Suppl 1: S5–S11. doi:10.1016/j.ypmed.2011.08.001. PMC 3287051. PMID 21962471.

Common Sense

March 19th, 2013
7:39 am

Go to the FDA’s website and read the complaints yourself. There are teenage girls all over this country and others with severe neurological disorders and other serious complications (including deaths) as a direct result of being injected with this horrible vaccine. If you care that little about your child that you are willing to risk your child’s life simply because the government, the media, and the pharmaceutical industry are scaring you into believing their lies, then you are a horrible parent. The internet is loaded with great documentation of everything that is wrong with this vaccine. Do your homework and don’t just buy into the lies. You are supposed to be looking out for your children, not willingly putting them in danger.

Brian

March 19th, 2013
7:42 am

I think the reason that there has not been widespread adoption is due to the vaccination-autism debacle from years back. While this “study” was proven to be false, people get things stuck in their head and believe what they want to believe. This has spilled over into this vaccine.

A reader

March 19th, 2013
7:47 am

“The internet is loaded with great documentation of everything that is wrong with this vaccine.”

Because if it is on the internet then it must be true **eye roll**

Ask your DOCTOR about the risks and discuss it with him/her. Yes, there are risks but they only occur in a small percentage of people. My daughter has never had an adverse reaction to any vaccine so I felt that the benefits definitely out way the risks for her. But this is an individual decision that you need to make for yourself and your child.

Mother of 2

March 19th, 2013
8:01 am

Both of my sons had the vaccine. I don’t have daughters. But I waited until my insurance covered it before giving them the series of shots because it was so expensive. My pediatrician was very helpful and didn’t push the vaccine. He simply explained the pros and cons and my boys and I made the decision to go ahead and vaccinate.

Polio, TB, pertussis, and measles are public health vaccinations – we vaccinate our children for their own good as well as the good of the community. HPV is a more personal decision. My boys didn’t get vaccinated until they were older (16 and 20), and I wanted them to be a part of the decision. Not all children are sexually active in their teens and early 20’s, and I was lucky to have the luxury of having time to discuss the vaccine with my boys. Parents need to know their own children and decide what’s best. It’s also important to know the real risks and benefits before deciding.

Decatur Guy

March 19th, 2013
8:27 am

“Why are parents so leery of the HPV vaccine?’

The fact that you asked that questions proves what a moron you are.

southpaw

March 19th, 2013
8:30 am

My son figures his pants are better protection from HPV than the vaccine would be. Since he’s good at using the pants correctly, I agree with him. Since he doesn’t like shots, and I don’t like spending money unnecessarily, he’ll forgo the shot, at least for now.

ATL Born and Raised

March 19th, 2013
8:33 am

@Common Sense

Direct from the CDC itself, only 6% of adverse-event reports have been documented as “serious”. Keep your fear-mongering to yourself. All vaccines, prescriptions, medical procedures, etc have risks. Generally, however, the benefits to individuals and society more than outweigh these risks.

http://www.cdc.gov/vaccinesafety/Vaccines/HPV/HPVArchived.html

FCM

March 19th, 2013
9:07 am

My older one has had it. My younger one will get it next year.

Whatever I can do to lower their chance of cancer I am going to do. Their father agreed.

She got the Hep A one at the same time. Would you have second thoughts about getting that?

Jeff, I would think the boys would want to protect themselves from being carriers. They would want to protect their future wives. Plus this like many other things is probably causing problems in boys too we just don’t hear about it.

A woman is more likely to survive a breast cancer diagnosis than a man. It is a still a death sentence for men, mostly because they do not get routine chest exams like women do. Thus it is not caught in time. (I am aware this vaccine does nothing for this but it is an example of more awareness among men is needed).

My mother says when my brother was a young man (11 – 14) the doctor wanted to the birds & bees check with him….My brother said doc I got it! “You keep your d*&$ to yourself”

Techmom

March 19th, 2013
9:20 am

Jeff, I was actually one of the parents who asked my son’s doctor why the vaccine WASN’T available to boys when it first came out. Girls may suffer more consequences from HPV but boys are the ones passing it along. Wouldn’t it suck for your son to get married later in life and find out that HE passed the virus on to his wife? We’ve talked plenty of times about male birth control so I’m kind of surprised you’re taking this side.

Our insurance did not cover the vaccine for my son a couple of years ago and then when I took him for his physical last year, the doctors office didn’t have the vaccine in stock so we put it off. I would like for him to get it though.

I’ve seen the “scary” reports of side effects but so far I don’t think any have been substantiated.

Old School

March 19th, 2013
10:09 am

A couple of relevant points: If you have sons or daughters who you are pretty certain will become sexually active by middle school because ‘all kids do’, by all means get them the vaccine. On the other hand, if your believe your son or daughter is or will be armed with the maturity and judgment to avoid sexual activity until they can make their own decision about whether this vaccine is right for them, then why force it on them so early in life? We all know what causes HPV, right? Note to parents who are certain their child will be sexually active so early in life: I’m sorry for your circumstance and I feel your pain. Sounds terrifying to have worry about that in middle school.

Rawmilkdrinker

March 19th, 2013
10:24 am

I had a friend who died from cervical cancer. It’s not a good way to die! I’ve heard plenty of descriptions of whooping cough from ancestors who witnessed cases of in the early half of the 1900s. Yes, I know that is ancient times to most of Atlanta’s current residents. Whooping cough may not always kill you but it’s not pretty either. I’ve seen livestock and dogs with tetanus infections. Tetanus infections aren’t a pretty way to die either.

Virginia

March 19th, 2013
11:05 am

I am 49 y.o., and I was recently diagnosed with HPV. I have been sexually active with two men and married them both (consecutively, not concurrently). Since I was found to have several pre-cancerous cells, I will have Pap smears every 6 months for the foreseeable future. If that’s the worst of it, praise God! I wasn’t aware that my sons could be immunized. Thank you for that info.

Me

March 19th, 2013
11:20 am

I think what happened was that when it originally came out, it was stated that it only prevents a certain type of virus that causes uterine and or cervical cancer, not all. That being said, parents felt that it wasn’t worth it to get it because you could get the vaccine and STILL end up with a cancer that wasn’t covered. It’s kinda a little like the flu shot. It’s great if you get the one for that years strain. If you get the wrong one, you go down just like everyone else. I have a few years to make this decision for my daughter and I still don’t know what I’m gonna do. So many medical interventions have gone horribly wrong. Just look at the lawsuits for companies knowingly distributing medicines that were later found to harm or even kill people. For all we know it could make them sterile, have reproductive problems or cause problem in their future children. 2006 is not a long time to see results. Just like the H1N1 vaccine that they pushed out so fast a few years ago. How long before they are saying that cause some time of condition in the children that received it? I hope never, but with big companies only looking at dollar signs…..you just don’t know.

Parent

March 19th, 2013
12:00 pm

“Why are parents so leery of the HPV vaccine?”

Because it forces them to confront the idea that their children might have sex.

Parent

March 19th, 2013
12:04 pm

“The internet is loaded with great documentation of everything that is wrong with this vaccine.”

Like the commercial says: “They can’t put anything on the internet that isn’t true” . Have fun with your French model date.

Parent

March 19th, 2013
12:09 pm

“On the other hand, if your believe your son or daughter is or will be armed with the maturity and judgment to avoid sexual activity until they can make their own decision about whether this vaccine is right for them, then why force it on them so early in life?”

What if you believe they are staying sexually “pure” and they prove you wrong by getting cancer from HPV?

Parent

March 19th, 2013
12:10 pm

“On the other hand, if your believe your son or daughter is or will be armed with the maturity and judgment to avoid sexual activity until they can make their own decision about whether this vaccine is right for them, then why force it on them so early in life?”

Or are you trying to say that if they get cancer from sex, it serves them right.

Tiffany

March 19th, 2013
12:36 pm

Intelligent and caring parents will get their children immunized against HPV. Why on earth would you NOT?

Political Mongrel

March 19th, 2013
12:37 pm

How many people will become sick and/or die because of Jenny McCarthy’s anti-vaccine hysteria? The contagion of her ideas is deadly.

Ann

March 19th, 2013
12:40 pm

@ ATL Born and Raised – You state that only 6% of adverse reports have been documented as “serious”. Wow, 6% is huge. Six out of every 100 girls or boys have serious reactions. That is a lot of kids.

Dr. Diane Harper, one of the lead developers of Gardasil and the lead researcher in Phase II and Phase III trials of the vaccine is strongly advising parents to know more about the risks. Comments that she has made in interviews the past couple of years raise serious questions. She actually states that the risk of death with cervical cancer is the “same” as the risk of serious adverse affects with Gardasil. And, she states that the risk of serious adverse effects may be greater than the risk of cervical cancer the vaccine is intended to prevent. Some of these adverse effects are very serious debilitating illnesses, such as strokes, and also deaths.

Anyone who thinks that parents are skipping the vaccine simply because of some irrational fear related to the Autism/vaccine issue is insulting parents who are doing their due diligence to evaluate these risks and benefits. Cervical cancer is very preventable with routine pap smears. Skipping the vaccine does not necessarily increase your risk of cervical cancer if you are getting regular pap smears through your teenage and adult life. There is “no data” yet that measures whether cervical cancer will be reduced or not with this vaccine.

Okay, so given that 6% have serious reactions, let’s look at the risk of cervical cancer over the lifetime for U.S. women (1 out of 117). So, there’s less than 1% chance of cervical cancer, but 6% have serious vaccine reactions. This is what makes it very difficult for parents and teens to weigh the benefits with the risks.

Dr. Harper’s statements are quite enlightening, including how little research has been done with boys. And, she also states that the vaccine does not prevent cervical cancer, that it only helps prevent abnormal pap smears. She says that, in order to prevent cervical cancer, as a matter of public policy, the vaccine needs to “last” 15 years and it only lasts 5. She complains that Merck was given too much leeway in how they are marketing the vaccine. She states that the best way to prevent cervical cancer is through pap smears, which do not have negative risks. She also discusses the link between Guillian-Barre syndrome and the vaccine. You can read some of her comments here:

http://www.cbsnews.com/8301-500690_162-5253431.html

Parent

March 19th, 2013
12:44 pm

“How many people will become sick and/or die because of Jenny McCarthy’s anti-vaccine hysteria? The contagion of her ideas is deadly”

A lot of children will die. If they are the result of their parents’ listening to Jenny McCarthy, I guess we should just say they deserve to die. Darwin Awards to them.

HB

March 19th, 2013
12:53 pm

Ann, she wrote 6% of adverse reports, meaning 6 out of every 100 who have reactions, not 6% of those who get the vaccine. The other 94% of reactions were not serious.

ATL Born and Raised

March 19th, 2013
12:55 pm

@Ann I suggest you actually read the link I posted. Many of those “reactions” were only tangentially related to receiving the vaccine; many of the recipients were already at high-risk for developing blood clots, etc.

HPV doesn’t just cause cancer. It also causes genital warts. And considering over 80% of the sexually active population has some form of HPV, I think this vaccine is a risk worth taking. Remember HPV is largely asymptomatic and people pass it back and forth unknowingly.

Parent

March 19th, 2013
12:56 pm

Whoa, Ann, I think you need to improve your reading skills. “@ ATL Born and Raised – You state that only 6% of adverse reports have been documented as “serious”. ”

She didn’t say what percentage have ANY adverse reports. The CDC states that ANY adverse reactions were reported in only 1 out of 1800 vacinations. And out of THOSE only 6% were “serious”. The chance of having a “serious” adverse reaction was 1 in 30,000.

according to the CDC:
•The most common events reported were:
◦Syncope (or fainting)–common after need injections, especially in pre-teens and teens
◦Local reactions at the site of immunization (pain and redness)
◦Dizziness
◦Nausea
◦Headache

ATL Born and Raised

March 19th, 2013
12:58 pm

Also, pap smears don’t prevent cervical cancer. They can only detect abnormal cell growth in an early enough time frame to intervene before it becomes deadly.

Ann

March 19th, 2013
1:15 pm

Pap smears do prevent cervical cancer. They detect pre-cancerous cells “before” they become cancer. Once detected, they can be removed and the person never gets “cancer”. In that regard, they do prevent it.

@ Parent – the CDC does list the most common symptoms. Parents, however, should not just “ignore” the more serious effects that have occurred in thousands of cases. If one of the creators of the vaccine acknowledges these serious effects, why shouldn’t parents know about them in order to make their decision? Dr. Diane Harper is not a “Jenny McCarthy”.

Parent

March 19th, 2013
1:34 pm

“Parents, however, should not just “ignore” the more serious effects that have occurred in thousands of cases.”

Ann, in 20 million vaccines, there were 734 “serious” effects reported (not thousands) including 32 deaths. They are still studying those 32 deaths (and other seriou effects) to see if they had ANYTHING to do with the vaccine. I am not asking parents to ignore the risks, but to discuss it with their doctors. The risks of contracting cervical cancer should be weighed against the risks of the vaccines (and the risks of genital warts, and transmitting the disease to others, etc.).

And, by the way, pap smears do not PREVENT cancer, they only give early warning of it. Repeating a lie does not make it true. People on this blog are intelligent enough to realize that.

Jenny but not McCarthy

March 19th, 2013
1:40 pm

Ann, you are absolutely wrong about pap smears “preventing” cancer. You are also wrong that once cancer cells are detected through a pap smear, “the person never gets cancer”. It is just not that simple, although I wish it were. My aunt had abnormal cells removed several times, yet she developed cancer. She ultimately had to have a total hysterectomy, but fortunately she survived cancer. And for those who think cervical cancer is some kind of just punishment for immoral behavior by women – my aunt contracted HPV from her husband. My children will be vaccinated.

cobbmom

March 19th, 2013
1:46 pm

Am I the only one that remembers Michelle Bachmann loudly proclaiming during her presidential bid that a woman at a meet and greet told her that her daughter became mentally retarded (her word, not mine) after having the vaccine? Between her and Jenny McCarthy we have a generation of under vaccinated children who pose a threat to all of us. My child’s school has already had a whooping cough outbreak because of stupidity. I told my husband, who is an attorney, that if any member of our family gets sick because of these unvaccinated children we will sue the pants off the stupid parents. He said he didn’t think there was legal presidence, I told him I didn’t care, at least they would have to pay legal fees and face the embarrassment of having everyone know that they are stupid.

Parent

March 19th, 2013
1:51 pm

” He said he didn’t think there was legal presidence,”

You need to ask him how he spells precedence.

Parent

March 19th, 2013
1:54 pm

You have a lot of parents who say ” my kids don’t need no vaccine against HPV because the only way you can get it is through sex, AND THEY BETTER NOT BE HAVIONG SEX, OR I WILL KILL ‘EM!”

Parent

March 19th, 2013
1:55 pm

Ann

March 19th, 2013
2:01 pm

@ Jenny but not McCarthy – You misinterpreted my statement. To rephrase it better, I was explaining how the pap smear “prevents” cancer in the cases where abnormal cells are removed, resulting in no future cancer. In those instances of prevention, the person does not get cancer. And “prevention” is an appropriate word to describe it. I did not intend to imply that “screening” tests are always 100% accurate and that there are never cases of cancer. No screening test of any type is 100% accurate at all times.

Just Me Thinking...

March 19th, 2013
2:02 pm

Once again, it is not a vaccine against all the different types of viruses that cause cervical cancer..just some. It will not prevent all types of cervical cancer and should not be viewed as a cure all. Please make informed decisions. Do the research for yourself and then make the decision you feel is right for your child. That’s what I plan to do. It’s not about whether a child will or won’t have sex. It’s about injectng them with something that will effect them whether for good or bad for the rest of his or her life. I mean for it to be preventative long term doesn’t it have to change their immune system in some way. In the act of possibly saving them from one thing we could be causing the body to potentally create something worse. I don’t know, and that is why I will be researching it until time to make my decision. Blogs are good sounding boards but not always great for factual information.

Parent

March 19th, 2013
2:32 pm

Sort of reminds me of a cat I used to have. I had put off getting the cat spayed but was not worried about it, because she was a totally indoor cat (takes two to tango, no male cat= no pregnancy). One day she goes THROUGH the window screen. Shows up again three days later looking all satisfied. Next thing you know I have a cat and five kittens.

a reader

March 19th, 2013
2:34 pm

Interesting in that we didn’t vaccinate daughter #1 right away because at that point the vaccine was new. It’s not new any longer, and the data has it as pretty safe. Both Ds have now gotten it, and if I had a son, he’d have it too. Men *transmit* HPV. That’s why they need to be vaccinated.

Jeff

March 19th, 2013
2:50 pm

Cobb, with all due respect, we do not have a genreation of UNDER vaccinated kids. More children take more vaccinations now than at any time in our history.

Parent

March 19th, 2013
3:02 pm

” I was explaining how the pap smear “prevents” cancer in the cases where abnormal cells are removed, resulting in no future cancer. In those instances of prevention, the person does not get cancer.”

So I guess you would say that mammograms “prevent” breast cancer. Tell that to my wife who died of breast cancer. Too bad there wasn’t a vaccine against breast cancer.

Parent

March 19th, 2013
3:03 pm

“More children take more vaccinations now than at any time in our history.”

What PERCENTAGE (not just raw numbers) of children are vaccinated?

Rose`

March 19th, 2013
4:12 pm

I can’t even read all the comments because I’m actually amazed at how many parents think “their” kids won’t be having sex. Really?? You are in for a rude awakening.

non committal mind reader

March 19th, 2013
4:35 pm

She actually states that the risk of death with cervical cancer is the “same” as the risk of serious adverse affects with Gardasil. And, she states that the risk of serious adverse effects may be greater than the risk of cervical cancer the vaccine is intended to prevent.

BINGO! At least I didn’t read through ALL of the comments before at least one person made the first non-emotional case that defines the risk correctly. Once you realize that the odds of a serious adverse side affect are about the same as the odds of dying of the disease that it prevents, one is left with the question, why?

The only reasonable explanation is that if enough kids get vaccinated for a long enough period of time, the disease mostly goes away. This make good sense when the disease is rubella, or polio, or other communicable diseases that (without a vaccine) would ravage our communities. But even now, when HPV “ravages” our community, few people die from it. Thus, the HPV vaccine is expensive, takes three shots, and then does not reduce the suffering in our community… we simply swap one type of suffering (cancer) for another (the serious adverse side affect of the vaccine).

Not only that, if we were to subject boys to this vaccine, their possible adverse side affects FAR OUTWEIGH their risk. You who are giving your boys the vaccine might thinks its cute to “protect the girls”, but you are subjecting them to a potential serious risk… a risk that they do not have even if they catch the disease. Looking at it from a risk standpoint, you are STUPID to give this vaccine to your boys!

So getting this vaccine, if you are a girl, swaps one risk for another, and costs you a lot of money to do so. It is definitely worth it to society for girls to do this. It may not be worth it to the individual girl to do so.

Getting this vaccine as a boy exposes you to risk that you would have never been exposed to. While society may benefit, it is definitely NOT worth it to the individual boy to do so.

Ann

March 19th, 2013
5:14 pm

@ Parent – I don’t know where you got your figures. I have seen other numbers regarding deaths totaling over 100 and other adverse event numbers. Google “the truth about gardasil” to see information. Furthermore, all experts agree that “adverse events” are way under-reported. In a lot of cases, the calls to report are simply not made, either because the medical provider does not take time to report it or the parent does not know about the reporting process. I guess you are telling your daughters or other female relatives to not get mammograms or pap smears since they don’t “prevent” anything, in your belief.

I am not opposed to all vaccinations. What I am “for” is an honest, up-front declaration of known and possible risks for each vaccine so that parents, including myself, can make informed choices about each one. The CDC introductory article on the HPV vaccine simply talks about “most common” risks, listing fairly minor things, which downplay the risk information. And, there is a vague statement about serious adverse events being “under study”. Why no mention of the auto-immune disorders that one of the creators of the vaccine talks about? Do we continue to vaccinate millions of kids while we wait for that data? Where is the data on boys? Point me to one peer reviewed study that shows that cervical cancer cases or cervical cancer deaths have been reduced due to the vaccine? Unfortunately, these studies are not done before the product goes to market. Serious adverse events are not tracked over any reasonable length of time before the product goes to market. All of this is done later, and our children are the experiments.

I believe this is the main reason that some parents have doubts about vaccinations, in general. It is because the information is sometimes suppressed and glossed over. It is not because of a celebrity such as Jenny McCarthy. If the CDC and others would be up-front and lay everything out on the table, and state exactly what is known, not known, or what is suspected, I believe there would be more compliance with vaccines. Instead they are afraid that the truth will lead to fewer vaccinations; when, it may very well increase compliance, as openness would lead to more trust.

At least parents should know about some of these stories of teenagers that experienced these adverse events. It is heartbreaking. Even if they are rare, we need to know about these girls and boys. They have a story to tell. Their lives have been devastated in their teenage and early adult years. If they had skipped the vaccine and later acquired cervical cancer, that typically hits much later in life, 40’s, 50’s and beyond.

Parent

March 19th, 2013
6:10 pm

“I don’t know where you got your figures”

The CDC website. I trust it more than Jennymccarthy.com.

Parent

March 19th, 2013
6:12 pm

Ann, apparently you think the CDC is conducting a massive coverup.

Old school

March 19th, 2013
8:34 pm

@Parent – You come across like an angry activist, perhaps on the payroll of the pharma that provides the vaccine in question, or maybe on the payroll of the CDC. Are you either, all or any? Can you do your job without anger? (angry rant coming in 1 . . .2 . . .3. . . )

Ann

March 19th, 2013
8:49 pm

@ Parent – Check out the report issued by the Department of Health and Human Services (HHS) entitled “CDC’s Ethics Program for Special Governmental Employees on Federal Advisory Committees”. The conflicts of interest among the CDC’s vaccine advisory committee members have been well documented and are easily verified with a little research. The report concluded that additional controls needed to be implemented to prevent future abuses. Many advisors have financial ties to vaccine manufacturers.

When millions and, sometimes, billions of dollars are at stake, history has shown the incentive to cover things up is great. Afterall, Merck, one of the vaccine manufacturers, is the company that court documents show maintained a “hit list” of doctors to be “neutralized” for speaking out against Vioxx. The industry comes down very hard on doctors who speak out and raise criticisms.

Read as much as you can about the pros and cons and decide what is best for your son or daughter. There are so many things that raise questions that need to be explored. For example, the research phase trials of Gardasil leading up to approval were all done on girls age 15 and up, yet it is recommended for girls as young as 11. For the age 11 group, it will be at least 25 years before we learn whether it was effective at lowering cervical cancer rate. The marketing claims also may lead people to be complacent and believe they are “protected”, when the vaccine wears off within 5 years, and may potentially lead to an increase in cervical cancer rates.

Btill

March 19th, 2013
9:53 pm

I had my son get the HPV shot today now he is complaining of being very hot. Fast heart beat and a stomach ache! Is there any idea is this is something I should worry about. I dont want to over react

Realist

March 19th, 2013
9:58 pm

I find it so interesting that so many would criticize the efforts of people with NO financial stake in the matter who are trying to wake people up to the documented side effects of this vaccine while they get every bit of their information from their doctor (who makes money off the vaccine and is likely paid by the pharmaceutical companies for his support), the CDC which, like the FDA, is just a giant revolving door for pharmaceutical company employees, and the companies themselves. Qui bono – who benefits? It is especially shocking given the potential harm, and that these are your own children.

Here is the most visited alternative medicine site on the web and what they have to say. The author is an MD by the way.

http://articles.mercola.com/sites/articles/archive/2012/10/16/unproven-hpv-vaccine-safety.aspx

Realist

March 19th, 2013
10:02 pm

Btill – vaccines are full of very harmful chemicals that are directly injected into the body with no opportunity for the normal parts of the immune system (found in the gut, the intestines, the intestinal walls, etc.) to respond. Your son is either reacting poorly to one of these chemicals or is suffering from the normal attack on his immune system that vaccines cause. He could also be experiencing the damage to his immune system that vaccines also induce via the mercury, egg, shark-extract, aluminum, or other chemicals they generally contain.

Your doctor and the traditional medical establishment will deny all of this of course.

HB

March 19th, 2013
10:21 pm

I haven’t done the research myself, but I certainly don’t trust any “facts” presented by someone who doesn’t understand the difference between 6% of reactions and 6% of vaccinated patients. The difference between those two figures is huge!

The CDC site (which is where the 6% figure you cited came from) said there have been over 9,000 reported adverse effects among I think 16 million vaccine recipients. So for ease of math, let’s go ahead and round that up to 10,000. That’s .000625% of folks having an adverse effect or 6 in 10,000. Heck, let’s go ahead and say half go unreported — that’s takes us up to 13 in 10,000. But only 6% of those 13 people (and that’s extra generous, since I think serious reactions are less likely to go unreported) have serious reactions. Again, for ease, let’s add a zero — 130 reactions in 100,000. Of those 130, roughly 8 in 100,000 would have serious reactions. Nowhere near the 6 in 100 you used as the basis of your argument that more people would have serious reactions than would ever get cervical cancer.

Ann

March 19th, 2013
10:33 pm

@ Parent – The CDC website where you got your figure of 32 deaths is referencing a study that looked at data between June 2006 and December 2008. That figure only covered those two and a half years, and is over four and a half years old. See: http://www.cdc.gov/vaccinesafety/Vaccines/HPV/jama.html

The current figure is now over 100 in the Vaccine Adverse Reporting System. While death reports around the time of vaccination do not necessarily prove a connection, it raises a red flag to be investigated thoroughly.

HB

March 19th, 2013
10:49 pm

Yes, they should absolutely be investigated. But keep in mind, the increase in reported deaths near time of vaccine does not equal an increase in frequency. 32 and >100 mean nothing unless compared with number of people having received the vaccine at the time that those are the stats. As more vaccines are given, all numbers will go up — more people will experience adverse reactions, more will die, and more will be just fine. Percentage of serious adverse reactions held steady at 6% of all reactions.

Ann

March 19th, 2013
10:57 pm

@HB – Where is this 9000 figure you are getting? Over a year ago, it was over 25,000 (with over 900 reports of persons becoming disabled). Can you give the web site where you got this 9000 figure so we can see what year that data is from or what time period? The CDC and VAERS database lists a much higher number. In addition, you misread my post. The 6 in 10 was not the basis of my argument that more people would have serious reactions than would ever get cervical cancer. That is a separate quote directly from Dr. Diane Harper, one of the lead developers of the vaccine. If you re-read my post, it is her argument, not mine. Look her up and you will find some interesting dialogue that is food for thought. In the haste of reading, I did misread the person’s earlier post referencing the 6 in 10; regardless, 6% of adverse reports being serious is still a lot of children, especially considering the known “underreporting” to the database. It has been estimated that between 1 and 10 percent of events are reported, so the numbers may be much higher.

HB

March 19th, 2013
11:09 pm

I saw it earlier today on a CDC page that must have been older, but it had the same 6% figure for serious reactions among adverse reactions. 25,000 with how many total vaccines given?

HB

March 19th, 2013
11:13 pm

Found it – it was ATL Born and Raised’s link and the figure was from 2008.

HB

March 19th, 2013
11:28 pm

Is 6% of reactions being serious a high rate? What is a “normal” rate? And yes, no doubt, reactions are underreported, but nonserious reactions that do not require medical attention are less likely to be reported than serious ones. The data from 2008 (June in my link, Dec in yours, but similar %) is 3 or 4 serious reactions per 100,000 vaccines (I rounded up a lot and assumed a high number of unreported cases to get to 8). That doesn’t sound high to me.

Ann

March 19th, 2013
11:44 pm

There is a lot of useful information in this article on an interview with Dr. Harper, where she provided detailed written responses. She oversaw the clinical trials and is an expert on HPV. She outlines, in a concise bullet point list, the benefits and harms of pap screening and the benefits and harms of the vaccine. And, she also outlines suggestions for further research and ways to improve the Adverse event tracking. The article is from a few years ago, but there is so much helpful information packed into it and it gives a good overview of the issues from her perspective.
http://www.huffingtonpost.com/marcia-g-yerman/an-interview-with-dr-dian_b_405472.html

Ann

March 19th, 2013
11:53 pm

One of the things Dr. Harper writes about is having a better system of tracking what exactly happens “healthwise” with kids after receiving vaccinations. It seems logical to think that serious reactions would be reported more often than minor ones, but parents do not always “connect the dots”. Families experiencing the death of a child do not always have money for an autopsy to evaluate brain tissue or other factors. Unfortunately, investigations are quite limited in many cases.

Ann

March 20th, 2013
12:14 am

The incidence of new cases of cervical cancer in the United States is 7 per 100,000 women. Cervical cancer deaths decreased by approximately 74% in the last 50 years, largely due to Pap screening.

Parent

March 20th, 2013
5:38 am

“The incidence of new cases of cervical cancer in the United States is 7 per 100,000 women”

PER YEAR. Don’t forget that.

Parent

March 20th, 2013
5:45 am

“vaccines are full of very harmful chemicals that are directly injected into the body with no opportunity for the normal parts of the immune system (found in the gut, the intestines, the intestinal walls, etc.) to respond. Your son is either reacting poorly to one of these chemicals or is suffering from the normal attack on his immune system that vaccines cause. He could also be experiencing the damage to his immune system that vaccines also induce via the mercury, egg, shark-extract, aluminum, or other chemicals they generally contain.
Your doctor and the traditional medical establishment will deny all of this of course.”

If you believe that, then you should just let your son/daughter be unprotected until they become 18 – then they can make up their own mind. But God help them if they contract HPV and cancer that could have been prevented. People that deal with other cancers WISH there was a vaccine to prevent them.

By the way – that 7 in 100,000 translates to 12000 women being diagnosed EACH YEAR with cervical cancer. About 4000 women DIE each year from cervical cancer. So much for the theory that pap smears PREVENT all cervical cancer.

Parent

March 20th, 2013
5:46 am

“Families experiencing the death of a child do not always have money for an autopsy to evaluate brain tissue or other factors.”

My understanding that in ANY death where the cause is not obvious, the State requires an autopsy.

Parent

March 20th, 2013
6:55 am

” He could also be experiencing the damage to his immune system that vaccines also induce via the mercury, egg, shark-extract, aluminum, or other chemicals they generally contain”

Don’t forget the eye of newt and the wing of bat.

Ann

March 20th, 2013
9:54 am

@ Parent, Regarding “About 4000 women DIE each year from cervical cancer. So much for the theory that pap smears PREVENT all cervical cancer.” Your comments would be more helpful if you had data that showed how many of these women had routine, regular pap smears. There are far, too many women that do not keep up with regular appointments. There is a higher incidence of cervical cancer in the Hispanic population, for example. While there are some unfortunate cases of cancer in women who did receive regular exams, and some particularly agressive cancers that don’t respond to treatment, pap smears have resulted in a huge reduction in cervical cancer. We have decades of data that already prove that. I have a good friend who died of cervical cancer and frankly, she did not start out with the “best doctor” in the early years of her diagnosis. That can make a huge difference, as well.

Ann

March 20th, 2013
10:01 am

@ Parent – see the following comments from
http://articles.washingtonpost.com/2011-05-02/national/35233246_1_cervical-cancer-pap-smears

“In most cases, women who get cervical cancer in this country are those who did not get a Pap smear,” said Robert Hilgers, a gynecologic oncologist in Kentucky, one of the states with the highest incidence of cervical cancer.”

“Hilgers and other doctors say cervical cancer is highly correlated with poverty and a lack of health insurance. The Centers for Disease Control and Prevention cites disproportionate levels of cervical cancer among the uninsured and underinsured.”

“For instance, in the Appalachian region of Kentucky, where the poverty rate was 24.5 percent in 2005-2009 — compared with the national rate of 13.5 percent — women get cervical cancer at a rate that is one-third higher than the national rate, and they die at a rate that is 37 percent higher, according to statistics from the Kentucky cancer registry and the National Cancer Institute.”

Parent

March 20th, 2013
10:45 am

Ann – agreed that NOT getting a pap smear done can more readily result in dying from cervical cancer. And I read Dr. Harper’s insistence that getting a HPV vaccine does NOT alleviate the need for pap testing. I agree that pap testing is invaluable in helping diagnose early cervical cancer. I don’t know how many of those 4000 each year had also had regular annual pap testing.

I also agree that people should be informed about the risk of vaccines. My opinion is that the best way to be informed is to talk to your pediatrician or your gynecologist. If you don’t trust your doctor, you should change doctors. Don’t trust the internet, that is for SURE.

Parent

March 20th, 2013
10:54 am

As a side note, my former wife had mammograms every year. One showed no breast cancer, the next showed a 2.0 cm lump. Anything less than 2.5 is “early detection”. According to the statistics, there is a 95% survival rate for “early detection”. Unfortunately, they don’t define “survival” – they were talking about “5-year suvival rate”. Well my wife did live 5 years (actually 6.5 years). If you look at “10-year survival rate”, you get 50%.

That is why I am so adamant about taking advantage of a vaccine that could help PREVENT the infection that can cause cervical cancer.

Ann

March 20th, 2013
12:57 pm

@ Parent – Sorry for your former wife. I have witnessed a relative in a similar situation. Unfortunately, mammograms, while they can often be life saving, do not quite have as good a track record as pap smears. There has been a lot of debate in recent years about mammograms, how often you should have them, radiation exposure risks, problems with early detection that leads to biopsies and treatments (sometimes for cancers that would have never grown to the extent of causing problems during the person’s lifetime). Then, those chemotherapy treatments that might not have been necessary wreak their own havoc on the body and can cause vulnerability that leads to pneumonia and other life threatening situations.

I do hope that we can one day have vaccines that will prevent all cancers. They need to be thoroughly tested on all age groups and genders, with any safety issues tracked and studied. This does take time. I do fear that many who get the vaccine at a young age will not go back every few years for repeat doses. It will wear off and they will not realize they are no longer protected. The experts do not have any concrete idea yet of how long the vaccine lasts. Time will tell how this HPV vaccine works out. Hopefully, for the benefit of our children, the results will be good. Discussion of risks and problems does help keep pressure on pharmaceutical companies to be on their toes, as some drugs are “fast tracked” and revoked years later. We have seen that recently with several major drugs for heart disease.

Ann

March 20th, 2013
1:16 pm

While your doctors should always be one of your main sources of information, the Internet can absolutely be a valuable tool for patients and families. There is a lot of bad information on the Web, but there is also a lot of great information. There is a lot of stuff from respected medical sources. It helps patients and families know what questions to ask about at appointments.

You have to sift through it and consider the source, and read enough varying articles to get a broad enough perspective. For example, I recently had my first colonoscopy procedure. The first doctor I was referred to (by my Primary Care physician), I went for a consultation and I was given the “prep” instructions to follow before the procedure. I went home and did a little reading on the Internet and saw an article talking about “split dosing” prep (where you drink your solutions in 2 different phases instead one one) and research has shown this is better for detecting cancer. I was not given the split dosing instructions. I called the doctor’s office to inquire about it and was told that some patients don’t like waking up during the night to drink the second dose and sometime the copayment can be more ($50). They said they offered it as an option, but I was puzzled as to why I was not given a choice at the time of my appointment. You only get a colonoscopy every 5-10 years. Waking up at 4:00 am once a decade is not a big deal if it helps detect cancer better. I switched doctors and found a place that did the split dosing as a matter of routine. I would not have known about the split dosing if I had not done my own reading on the Internet.

Doctors, while most are well meaning, are busy, they don’t always keep up with the cutting edge or have time to, and they sometimes “prescribe” (and give samples) of the products that sales reps give them. You need to be a partner in your own care and come in prepared with good questions for your doctor when it is an important matter.

Parent

March 20th, 2013
6:30 pm

Thanks, Ann.

[...] Why are parents so leery of the HPV vaccine?Atlanta Journal Constitution (blog)“Concerns about safety and side effects for the human papillomavirus (HPV) vaccine — one of the newest shots recommended for adolescents — has increased among parents: 16% cited these fears as the main reason they did not have their daughters … [...]