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Bob

October 21st, 2008
9:07 am

My mom was still working at a department store and living at the same home where she had lived for around 60 years. She felt dizzy one afternoon at work. The next day she went two doctors… one a cardiologist who set up an exam at the hospital for the next morning. I wanted her to go strait down to Emory or to at least let me stay with her. My daughter lives next door so I thought she could at least call if she had an emergency so I agreed… after all she was a working adult with all of her wits.

When I arrived the next morning to take her for the exam I found her passed out on the floor. She had a stroke sometime between around 10 p.m. when I left her home and just before 7 a.m. when I made it back.
She is now confined to a wheel chair and can’t use her right side to write, talk, or walk. After keeping her in HER home for about 18 months and taking her to adult day care, my own health began to suffer.
Because mom was working until her stroke and was STILL saving at the time, she has had very little government assistance. She is now in a nursing home (paying all costs herself). The only reason
that I mention this is to beg those who in their golden years to do something NOW to make sure you can reach help in the event of an emergency. It doesn’t matter how close help may be if you have no way to reach them. A telephone may not get it. Your choice could be senior housing. It could be living at your home with someone else or with some type of call alert that you can wear even in the shower. If you value your independence protect it for as long as you can. Mom loves people and while I visit every day and she is with a caring staff I’m sure (especially with her inability to speak) that she doesn’t socialize to the extent that she would like. A nursing home can cost $6,000 or more per month NOT to mention prescription medication, etc. It’s cheaper to find emergency communications now… and to not take any chances if you feel signs of a stroke or heart attack. That extra night in a hospital is a lot cheaper than the costs you could incur if you don’t.

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Kimi

October 21st, 2008
9:31 am

My mother in law just moved in with us and it’s been overwhelming. She craves constant attention and is draining us financially, we were already living paycheck to paycheck before she got here and God forbid if one of us loses our job. I mistakenly invited her to “visit” our home four months ago and now she won’t leave.

We were lucky to find a home health aide who is good and my mother in law seems to like her, but the cost of the aide is siphoning all of her money. My mother in law has hardly anything to contribute to our household financially, and nothing to contribute mentally, physcially or emotionally. All she is doing is running up bills that we already can’t afford to pay before her “visit”, and I’m becoming resentful and don’t know if my marriage will last. I don’t know how we’re going to pay our bills with winter/heating coming up. We are blessed that we all get to eat a meal every day, but she always wants more food that she ends up wasting and throwing out which drives me crazy. I don’t know what to do. I have tried the community care services program, but they want her to turn over her all assets to medicare and her greedy children (my husband included unfortunately) don’t want to do that. I say use her assets (which ain’t much don’t get me wrong) so she can receive the care she needs, but particularly the siblings that are NOT caring for her refuse to do this.

We’ve even stooped so low as to apply for food stamps and I was totally embarassed to be even in there applying for ANYTHING. Her other children don’t care about her, have used her social security number for all types of “stuff”, my husband is the only one who has always tried to do the right thing by her.

I’m sure I will get blasted as being a selfish biitch for this post, but you know what it feels good just to be able to say it out loud for a change.

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Peta

October 21st, 2008
9:56 am

Kimi, I certainly understand where you are coming from.. I had somewhat of a similar situation.. MY mother took in her sister who has MS. It was beyond overwhelming. I had to leave my household (husband and 2 kids, plus pregnant with 3rd) to go to my mother’s house to help her care for my Aunt. It got so bad that we could not lift her anymore and ended up having to put her in a home and turning over her asset to Medicare. The home is better equiped to care for her since they have round the clock aides and lifting equipment. My advice: Sit your husband down and lay all the cards on the table. Do some research on Assistant living homes here in Atlanta. (there is usually a waiting list). Tell him you genuinely care about his mother and want the best possible care for her. Suggest to him that he has a family meeting with his other sibblings so that they can talk about ways to share the burden. (Hopefully they are in the same city or close proximity). Maybe she can spend three months with you, 3 months with another sibling and so forth. (The key is that you approach your husband with solutions so that you are not labelled as the nagging wife). Communicate to him that this is affecting your marriage which you value. This conversation needs to take place away from your mother-in-law. If he is not receptive you may have to seek the conselling with a third party . Last but not least..PRAY and ask GOD to show you the way and for Him to resolve the situation.
Kimi I wish you the best.. Peta

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Cindy

October 21st, 2008
10:50 am

Remember these are the ones who supported US when we were young and unable to make decisions on our own. I am sure there are some of us out there whose parents were broke but they did the best they could. It’s our turn to take care of them. So suck it up and deal with it.

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JDJ

October 21st, 2008
11:00 am

You have my FULL SYMPATHY!!! My mother, bless her heart, is in “memory care” in assisted living now — I tried to take care of her myself when my dad suddenly passed away. I lost 45 pounds in 4 months — it was a living hell to say the very least. I don’t know how my dad stood it; I wish he had asked for some respite cuz he certainly deserved it. Please don’t let you MIL take your life away, it can easily happen! Your hubby must take you seriously, and soon!

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sharon

October 21st, 2008
11:50 am

kimi there is nothing selfish about your thoughts.

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Loving Daughter

October 21st, 2008
12:08 pm

The only way I’d put my mother or father in a nursing home is if it became completely impossible for me to care for them — and even then, the nursing home would have to be close enough for me to go see them every day. As a child (and even into young adulthood), my parents made many, many sacrifices for me. Anything I can do soften their golden years or ease their fears and worries as they enter the twilight of thier final days/weeks/months/years — I’m willing to do. Period.

I don’t mean to be judgemental, but some of the posters on this blog sound so heartless. You’ll hope YOUR children don’t treat you like old garbage when you get old or infirm. One thing is certain: if you live long enough, you’re gonna get old (and sometimes ill).

Kimi, while I do feel badly for what you are experiencing in your situation, I would hope you can have some compassion. Put yourself in your MIL’s place, what would you want? Seek assistance through the United Way or Senior Connections — they can guide you in making the right decision for your family and for your MIL. If she is an “active” senior (not requiring r-t-c nursing care), she could live in a seniors community. Most charge rent based on the resident’s income. It would give dear MIL her own space, new friends, and activities — and also give your family the space you require. Good luck.

God bless us all.

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H C

October 21st, 2008
12:52 pm

kimi, if it were your mother, what would your response be? Would you want your husband to be more understanding? I have done it for both of my grandparents. It is not easy but sacrifices were made for the people who sacrificed for me. I had to live at my grandmother, give up most of my life to do so and care for her and make sure everything such doctors appts. bills, food, and her appearance was maintained. All of this while working 2 jobs, going to school full time etc. I did not know how I was going to do it but it had to be done. Family and her friends that were still able helped out with washing clothes, spending time, preparing food. It was not easy but if I had to do it again I still would. When she died she died very happy because her family was extremely good to her and she never had a care to worry about. This was done because she looked out for everyone as long as she could. We will be old one day and the real question is who will look out for us. Planning and sitting down with other family members to brainstorm is very key. I wish you guys well in this endeavor.

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Bill Clontz

October 21st, 2008
1:55 pm

My 93 year old mother lives alone and refuses to move into a smaller place where she could live so much more comfortably. She really needs someone to come by and check on her and do some house work, but isn’t willing to let someone come into her home. What should the family do? Should we abide by her wishes or shoulf we force the issue ? Her house is all cluttered, she has roaches, and her stove and hot water heater are messed up. Her bathroom is not suitable for her as she has trouble getting around without a walker. Please help!

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Cindy

October 21st, 2008
2:33 pm

Bill, the family should all pitch in. She doesn’t want to give up her home or her independance. Offer to go help her clean, go mow her lawn, you can spray for bugs. I am sure, at her age, she does not want any strangers in her house, especially the ones that will come in and rip her off.

I would NOT allow my mother to live like that at all. She raised and cared for you, now you need to give back. Why is this so difficult to understand?

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Peta

October 21st, 2008
2:46 pm

Bill ,While I certainly understand your grandmother wanting her independence.. It is time for you and the family to step in and take charge.. At her age she may not be operating in the right frame of mind which is limiting her rational and decision making.. Hypothetically speaking, if something was to happen to her (Lord forbid a slip in the bathroom) how would you and the family feel knowing that you could prevent such a thing. I am not sure of your Budget, however here are some suggestions:
- Hire a Private Nurses Aide that can serve as a live in help for a few days per week. This aide could serve as a companion, and do light housecleaning. (be sure to get references)
- Someone needs to move in with her immediately or
- She could move in with different family members on a rotating basis.
You guys decide.. However it should be a decison all the members of the family make and take forth to her. Do it before anything unfortunate happens..

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Lindao

October 21st, 2008
4:55 pm

Until you have had a disabled senior living with you, you can’t really understand how the family dynamic changes. It’s easy to say what you would do but in reality it is totally different.

I am an only child and my father moved in with us nearly 2 years ago. It is great having him around. Fortunately he had planned financially for his future so we are presently able to pay 3 ladies to stay with him while hubby and I work. However, to get these ladies we had to pay cash so nothing is deductible. If we wanted to “payroll” them the price would double at a minimum to cover all the other stuff. Also, 2 of the three are on restricted / monitored incomes so they have to work off the books. Too bad that’s the way things are today. Yes, I know about the liability, but these women are as warm and caring as any family member could be and I wouldn’t trade them for anything. We will continue in this manner until he either passes away, he has to go to a skilled care facility or we lose our help. It’s very expensive but cheaper than a care facility and hubby and I really do enjoy having him at home.

Even with the help, this is the most stressful thing I have ever done. It is like having an 83 year old willful child. Most of the time he’s just fine but he gets cranky and fussy and wants all the attention. He takes over the main TV (even though he has his own TV in his room) and we are expeced to watch only the shows he wants to see. It’s not easy to try to “correct” the person who “corrected” you all those years ago. The short-term memory is gone so when you advise them that something cannot or should not be done they won’t recall it later (like giving treats to the dog that could harm the dog – sugarfree candy can be poisonous to pets). They often think they have earned the right to make unreasonable demands. Thankfully, this is not the case with my Dad but my friends are experiencing this issue.

The single biggest problem we have encountered is helpful family and friends. In our case, it is family. They all live “away” (out of state) and they think they know how to handle every little issue that comes up. Then you end up with snitty little phone calls and emails questioning every decision you make, so you not only need to manage your senior but also those who have access to them. And the “away” folks will believe anything the senior tells them – regardless of the truth. They will even question the doctors’ decisions based on Internet research or what someone told them. I have a situation where an “away” doesn’t believe Dad’s cardiologist who said Dad did not have a heart attack and is sharing her opinion with all the friends and family in her circle. Since she was a practicing RN years ago, they all believe her and not me. Guess she went on to med school and I missed it?

Your life revolves around your senior. Their schedule becomes yours. If they can’t travel, you are expected to stay home 24/7-365. The family / friends will guilt the heck out of you if you want to take a break with your spouse – for a few hours or a few days – and heaven knows you will need some kind of respite, even in the best of relationships. But these caring folks do not / will not / cannot take your senior for a while and it is hard to be patient with the “aways” who have never had this experience but still want to tell you what to do.

All these issues notwithstanding, I wouldn’t change anything. Do I get crabby? You bet. I can be as selfish as the next person. I have a high-stress job that I love and that my Dad is very proud of me for keeping. I am trying very hard to provide the best situation I can for an active man who may be having the best day of the rest of his life today. We never know. I am blessed to have a great husband who is very helpful. I have a good support team of friends – some of whom are walking the same path as I am. This is a very important coping mechanism. We share challenges and solutions, and it is nice to be able to vent to someone who has a better grasp of the situation.

So I do understand how it can be difficult – especially if you have family and friends telling you what to do but not helping you at all. Be creative in your solutions. Talk with your local council on aging. Talk with social workers at the hospital. Keep smiling and be positive. Give your resource team a fine reputation to live up to and they’ll probably rise to the occasion. I have found that they will help caregivers who try to stay upbeat and not complain. And sometimes what you have is the best it’s going to get. So you have to be OK with that, too. But if you do the very best you can, you can be proud of what you accomplish – however small it may be. Good luck & God bless.

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Joy Johnston

October 21st, 2008
6:22 pm

Thanks to everyone who took the time to share their personal stories and experiences. There are many important topics and issues that have been raised by your comments, and we will cover those in future Caring and Sharing posts.

To those who offered support and advice, thank you as well. This is exactly what we hope to do with this online community, is to have an active and vocal group that can offer the emotional support and practical advice so important in difficult times.

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Jennifer Hines, CNA, AD, Chairperson for CNA on the Move

October 27th, 2008
1:04 pm

I think that Nursing Homes were designed to help families with non-medical skills to care for the older adults. It is hard to care for someeone you love so dearly in a professional medical manner. We as CNA have that same love and care in our hearts for the older adults and their families. But when working conditions are poor, supplies are poor, equipment poor, training has become from 6 months to 85 hours thing are not going to get better. A Nursing assistants enter the world of nursing not only because she/he cant afford nursing school but because no matter what caring for people is what we love to do. The Nursing homes pay nursing assistants 10-15% of the income of a resident but we have to provide 85% of the care. We cant afford to care for our own children and families and that makes is hard to care for anyone else. As a CNA I am proud of my career but is suffering to continue to do what i am doing. My back hurts I cant afford healthcare so when i work i must take the shortcut just to save myself for another day. The high turnovers for CNA is because we can go to any fastfood, Grocery Store, or department store and make more income to provide for our children. So I say to all CNA’s of Georgia Contact me Jennifer Hines, Chairperson for Certified Nursing Assistants on the Move and help to Build a Voice for all CNA’s over Georgia. Sonny Perdue proclaim June 12 -19 as Nursing Assistant Week. jenhines2002@yahoo.com

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priscilla

November 10th, 2008
2:34 pm

Nursing Homes are business,not a caring place.i agree with this statment A Nursing assistants enter the world of nursing not only because she/he can’t afford nursing school but because no matter what caring for people is what we love to do. The Nursing homes pay nursing assistants 10-15% of the income of a resident but we have to provide 85% of the care.i think they should step up to plate and do the job right(Nursing Homes).

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Jennifer Hines, CNA, AD, Chairperson for CNA on the Move

November 11th, 2008
10:08 pm

I would like to share a special place that will allow caregiver some relief of the mental/physical strain of caring for our older adults. Their is a service call The Respite House. A program design with caregivers in mind. The Respite House provide temporary relief from caring for our older adults and allow skilled Certifed Nursing Assistants to Care for your older adult. The Respite House provide weekend, holiday, vacation, or emergency stay so you and the rest of the family may travel. I designed this program after working for an Adult Day Service and Reading about the Night Mare on Nursing Home Street. As a caregiver everyone needs a break sometime. In order to continue to provide Quality Care to our Love ones.
Call Jennifer 404 438 6676

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Mrs. Francis

November 14th, 2008
9:39 am

For those who are providing care for loved ones with Alzheimer’s there is a great little book out, A Cup of Comfort for Families touched by Alzheimer’s. It’s filled with personal stories of other caregivers who are struggling to cope with this disease.

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j dyess calhoun

November 18th, 2008
6:27 pm

I have just published book based on 20 years of caregiving experience.
The book is designed to give caregivers ideas, lists of resources, websites and agencies that are helpful. The book also includes stories and experiences of family and friends who have been caregivers. It has been called a primer for the caregiver. If you need more info, visit:
http://www.caregivingcare.com or e-mail: care4caregiver@earthlink.net.
j calhoun

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Health

December 9th, 2008
12:50 am

Medical insurances are made to take the responsibilities of all the health problems. So in this scenario these companies should show all their services that have effective functionalities.

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susan

January 2nd, 2009
12:25 pm

I have had my mom in 3 different assisted living places and have now brought her to my home because of the poor conditions and poor care. I never went and found her dry. She was so drugged that she never knew when I came. And being incontinent,they only removed her wet clothes once per week. I had to go to bathe her myself because they said she refused a bath. I am very upset with the situation and try to encourage people not to put their parents there. I understand that workeres are underpaid but the facilities are way overpriced taking all the money these little old people have saved up and not givning the quality of care they deserve.

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[...] week, we published Caregiving journey changed my life, Jacqueline Marcell’s poignant tale of the lessons she learned while providing care for her [...]

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DiAnna Alsip

January 9th, 2009
12:59 pm

Enter your comments here My mother died Easter Sunday after an 8 year journey through dementia. I urge everyone I come in contact with who has parents on that rough ride to read The 36 Hour Day. An excellent source of “why” behavior. I wish I had it from the beginning, it would have helped me understand and ultimately have dealt with her disease in a better manner.

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Jane Johnston

January 9th, 2009
1:00 pm

My Mother has alzheimers or dementia. I don’t know for sure. She was diagnosed with Alzheimers, but she certainly isn’t following the signs that I read about. Mom is in a memory care facility. I wonder if I have done the right thing by her. I take her out almost every Sunday. I used to call her during the week, but she cries and I can’t stand it.
We include her in all holidays and family activities. I would not think of those things without including her. It is a sad, lonely time.

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Kats

January 9th, 2009
1:29 pm

My d/h and I have been caring for MIL with Alz for over 7 years. We feel blessed to have God’s direction in caring for her. God could have called her home years ago, but he allowed MIL to live us so that he could take care of us (d/h & me). We learn everyday through our caregiving the definition of the words compassion, unconditional love, sacrificial love, faith, the true meaning of family and the list goes on. Our caregiving is a daily witness to our children, extended family and friends of the love that we have for our parents and the love that Our Heavenly Father has for each one of us as his children. Yes, some days are headbangers and some days are funny. Some days pass with little or no notice of alz. But I wouldn’t trade the lessons I have learned for anything. My d/h and I feel we are better parents, better employees, better friends and stronger believers, etc. because of learning to live with alzheimers in our family. We know in the future that we will sleep at night knowing we did the right thing in caring for our loved one. But everyone must decide whether caregiving is for them or not. It is a time-consuming job and very demanding. Group support is very helpful and necessary.

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Denise Owen

January 9th, 2009
1:32 pm

My mother passed away on December 13th from complications due to breathing issues, but her main illness was Alzheimers. She was diagnosed with it 6 years ago and finally through sheer exhaustion from my father trying to care for her, we put her in a nursing home. It is an ugly, horrible disease. The frustration she felt when trying to remember people and what she had done in her life. And the pain in my fathers face as she struggled on a daily basis just to remember him. Her mother had the disease as well. Now, my brothers and I suspect that our father has it, because he is showing the same signs as our mother did. My fathers sister also has the disease. I have had an extremely difficult time coping with her loss. She was the strongest and most loving person I know. I miss her so much.

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Kathy Sough

January 9th, 2009
1:33 pm

I am a long distance caregiver for my Mom who was diagnosed with Alzheimers last year. It is a very difficult and emotional roller coaster ride but rewarding in that it gives a whole new meaning to the word life and living and enjoying every present moment one has with their loved one. My sister is the local caregiver and we are working very well together as a team. I have read the 36 Hour Day and it is an excellent book explaing Alzheimers, dementia and numerous other information that one should know in dealing and caring for your loved one. Thanks to the AJC for putting this in their newspaper.

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Kenn

January 9th, 2009
1:35 pm

Enter your comments here Although this blog is about elderly people it is projected that the baby boomer generation will overload the health care industry with Alzheimer’s/dementia. My wife was diagnosed at age 52 with Alzheimer’s. She is now 58 and in the severe range. I retired just months before her diagnosis so I am her full time caregiver. People need to realize that the caregiver’s life ends with the diagnosis also.

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Margaret

January 9th, 2009
1:54 pm

Enter your comments here
My mother died of Alz’s in 2006. I was happy to see her go home to be with the Lord because it was the most awful thing she had to endure. She was a very modest woman and all that was lost to the disease. My sisters were not much help to me in caring for her and I eventually had to place my mother in a nursing home and that was the end of her. The care there was not good and they put my mother on several mental health drugs ,to what I feel only added to the already heavy burden. Alz is a mean, vicious disease. I don’t wish it on my worst enemy.

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deecald

January 9th, 2009
1:57 pm

My mother is now 80 and was diagnosed with Alzheimers approximately 7years ago and she lives with my sister but we all help but this is an ugly disease. We have already lost our father many yrs ago, to a separate illness, and my mother is all we have and for her to now be in the mental state of not really knowing who we are, her whereabouts, and able to comprehend from day-to-day, just tears me apart. She was always our strong point when we had a problem or needed that shoulder to cry on. I love her and to know theres no cure for this is hurting me terribly, although I know when God takes her home, she will be in a better place, by his side. I just will miss her so. She has also lost two other sisters to this disease so now the doctors have asked us, the daughters, to make sure to keep ourselves checked because there is a strong possibility of us inheriting this disease. This is not something I am looking forward to putting my children through. God Bless everyone and your family that has to endure this pain…We will make it!!

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Margaret

January 9th, 2009
2:09 pm

Enter your comments here
My mother had to be placed in two personal care homes and two nursing homes before she went home to be with the Lord because of Alz’s. All four places were to her determent. She went from bad to worst in each one of these facillities. Not one of them helped her. They all had serious staffing and caring problems. If I had it to do over I would keep her in my home at all cost. The mental health medication was the worst. Namenda and Seraquill both put my mother in a state almost as bad as the Alz’s itself.

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Pamela

January 9th, 2009
2:26 pm

My mother in law passed away this past November after battling with Alzheimers for nearly 9 years. My father in law is battling with the disease now. It is so painful to watch loved ones suffer with this disease and just as painful on the caregivers. We are truly at God’s mercy with this disease. Let friends and family members know that you love them…today.

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Tricia

January 9th, 2009
2:26 pm

Kathy, no offense, but if you are long-distance, you’re not a caregiver. You have to live with to earn that title. Visits vs. 24/7 care are very different matters. Believe me, I know. Good luck to you family.

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Cindy

January 9th, 2009
2:32 pm

I helped my mother and father deal with his father with dimetia. It really takes its toll on family and friends.

We were living here, and my grandfather was living in Salt Lake City. My poor dad had to go out there at least once a month, for just over a year. Then my parents decided they needed to move out there, and care for not only my dad’s dad, but my Mom’s mom was getting older too.

It is so hard to see someone that you love, slip in to this other world. Dealing with someone you have loved all your life, who now doesn’t recognize you. It almost killed my dad.

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Ann

January 9th, 2009
2:41 pm

Enter your comments here
my mother has dementia or Alz, not exactly sure which one, but she diagnosed in 2004 which around the same time my father was diagnosed with stage four cancer and passed away within four months. It was very diffult in the beginning trying to understand the disease and in the mist of coping with my mother and her illness and losing my father within a two year period of my father death I lost a brother to cancer as well, so it’s been very difficult just dealing with the losses and the disease, although it gets hard sometime, I treasure every moment I have with my mother. There are some days she seems to understand what you are saying and has a valid response and there other times she struggle, but she always seems to repond when asked how is she doing, with a smile-I’m doing pretty well or pretty good. (this helps my day) We all work togehter as a family with sibling/granchildren to keep our mom at home as long as we can.

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Marilyn

January 9th, 2009
2:51 pm

Enter your comments here

Kathy ,
Unfortunatley a long distance caregiver is really not a caregiver. You have no comprehension what your sister is going thru as a truly only caregiver.

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Frank

January 9th, 2009
3:03 pm

Enter your comments here

interesting stories

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susan

January 9th, 2009
3:12 pm

I care for my mom. She will soon be 80 and has been diagnosed about 7 years. It is heartbreaking and very depressing to watch. Sometimes I think shes lost her will to fight and ready to give up. I can’t say that I blame her

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Ferias

January 9th, 2009
3:16 pm

My mother was diagnosed with Alzheimers at the age of 58. She was considered one of the youngest patient at Univ. of Texas Med. School. This was in 2001. Seeing a parent go from owning her own PT Clinic to being unable to read, talk, or recognize family memebers is very painful. She went through the anger stage but it was mostly against my father who is her primary caregiver. She is in the advance stages and is having seizures now. My father, sister and aunt are the caregivers. They have a schedule and do a great job. I go for a week at a time to give them a break but my father never wants to leave her for over a day. He feels its his responsibilty to take care of her since he took those vows. We still take her to family gathering and she tends to have a good time but she does get restless and is more comfortable at home. She enjoys watching children play and loves to listen to us talking when we were young. She loves to look at photo albums too. I am not a “care giver” but I support my mothers care givers. I will take my hat off to anyone who is a primary caregiver of someone with Alzheimers. I am not a fan of nursing homes I believe a person should stay in their familiar environment as long as possible. I have enjoyed reading all of your blogs on here…..

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Ferias

January 9th, 2009
3:23 pm

This is to KENN: Kenn your life should not end. If at all possible please get a nurse aide to assist you. My mother stopped wanting my dad to bath her and help her with certain things. Have an aide come in and give you some assistance.Many only charge $10 an hour. They will even come and sit with your wife if you just want to have some time for yourself. My father says that the aide is the best investment because she will stay while he goes fishing. You do not want the disease to take you too.

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marie

January 9th, 2009
3:49 pm

Formal caregivers in long-term care facilities should also be commended for their VERY difficult job of caring for someone with Alzheimer’s disease on a daily basis.

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Libby

January 9th, 2009
3:53 pm

Enter your comments here
My father was diagnosed with alz. Here is this brillant man who was an executive for Ford Motor Company that had deteriorated to an individual with the mentality of a 4 year old. He didn’t die of the alz.At the time of his death,we were discussing moving him to a care facility. I have 5 brothers, a sister, myself and my mother. Taking care of him took a terrible toll on my mother. It took ALL of us, round the clock to care for him/clean him/feed him etc. That is when he would let us. You could see pain and frustration in his eyes when he couldn’t recall our names or how to end a sentence that he started. I pray for each and everyone…..what an incidious disease Alzheimers is.

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Kaye

January 9th, 2009
4:27 pm

My father and mother could have cared less what happened to my Grandmother so I am trying to deal with her, 95 years old, and she has dementia. I never had kids because I was afraid I would be a parent like my mother and yet I find my life being taken over by dealing with my grandmother (who might i add was not there for me when I was younger). I resent it, hate it but don’t know what else to do other than make sure I end my life before I am in the state she is in.

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Leslie

January 9th, 2009
4:28 pm

My Dad died of Alzheimer’s at age 68; 3 years after his diagnosis. Like many of the folks above, I saw the strong, idealistic, very smart man I knew and loved become a shell of the person he was, until the disease took his life. Many people don’t know how devastating this disease is and how many younger adults get Alzheimer’s–it’s not an “old person’s disease” anymore! I recommend Georgians call the Georgia Chapter of the Alzheimer’s Association. They provide many services, including educational programs, support groups, caregiver respite and a Helpline where you can talk to a real person 24 hours a day/7 days a week. Go to http://www.alz.org/georgia and seek out their help. My family did!

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gail tison

January 9th, 2009
4:58 pm

My mother passed in April at age 90 from Alzheimer’s. She had it for 8 years. We started out with Assisted Living, then Personal Home Care and finally a nursing home. That was the hardest thing to do. But I felt I was honoring the person I loved by making sure they were taken care of. Over the last few years, she became more and more distant, no verbal contact at all and expressionless. I felt that I started losing her a long time ago. It was hard to see her that way because she was always a loving, fun, and exceptional woman. I miss her terribly, but I know she is no longer suffering. I recommend the book 36 hour day and also local support groups. That really helped me to understand the scope of this disease.

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Matthew Jones

January 9th, 2009
5:01 pm

My grandfather is in final stage of Alzheimer’s right now at the Georgia War Veteran’s Home. For those of you who do not know and live in Georgia, the War Veteran’s home in Milledgeville, GA have a special Alzheimer’s unit. It is only open to those who are veterans, but it is worth your while to investigate it as an option if one of your loved ones has this horrible disease. It took my grandfather nearly a year to get in, and it was sort of on happenstance that it happened, so also look into other options. I just know that they have top-notch care there, and they treat your relatives and everyone else’s with the upmost respect that they should recieve.

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Dena Thompson

January 9th, 2009
5:13 pm

I lost my dad to this very ugly disease on April 14th,2007. He was diagnoised at 57 and suffered with it for 11 years. My mom was his primary care giver.(She did not want to burden her children until the last 6 weeks of my dads life) He became very violent and she was scared he would hurt her or someone else or himself. I was a Long distance supporter but, I had 2 wonderful brothers whom helped out when they could. I would highly suggest that you get someone to come in at least 2 times a week to give the care giver a BREAK they lose their own idenity as they care for someone they love. My mothers health was highly affected due to her not taking care of herself. In the end she could not leave my dad by himself as he went through the wondering/ Sundowning stage to violent attacks. My parents would have been married 50 years this year..In the last 6 weeks of his life he went to 3 nursing homes, the hospital and a Senior Behavior center. As a family we thought that we were doing the best thing for him but, if we had it to do over we would have hired a nurse to do round the clock care and kept him at home to pass to a far better place than he was in. Once again I can’t stress enough to give Care givers a BREAK to some kind of normalcy in their life and to get them help whether they ask for it or not. My mom thought she was weak if she asked for help so she suffered in silence. If you are looking for support or have questions you can email me at dena.thompson@yahoo.com

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Kenn

January 10th, 2009
9:55 pm

FERIAS. Thank you for the advice. I retired with plans for a second career. That’s not possible now so money is tight. I have a caregiver that charges $13 an hour but that’s over $100 for a day. I can only use her when I have to go somewhere. I can’t bring myself to spend the money so I can go to a movie.
I’m 56 and in good health but I can tell that the stress is weakening me. My biggest fear is that something happens to me and then my wife will have to go to assisted living.

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[...] Caregiving Journey Changed My Life | Caring & Sharing – For eleven years I pleaded with my elderly father to allow a caregiver to help him with my ailing mother, but after 55 years of loving each other – he adamantly insisted on taking care of her himself. Every caregiver I hired to help him … [...]

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Vern M.

January 14th, 2009
12:56 pm

I’ve heard different accounts of the Elder Rage phenomenon before and even witnessed a few incidents of it as a child (which really shook me up). I’m lucky that there hasn’t been a need for someone to deal with this problem in my own family, but I think that for anyone to successfully perform their caregiving responsibilities, they would need at least some sort of specialized training. Since there are appropriate and tested methods of dealing with dementia or Alzheimer’s, studying up on them before being put into that situation is the best possible preparation that can be done: http://www.medifecta.com/ourproducts.asp

After that, it’s simply a question of compassion and stamina.

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Jennifer Hines, CNA, AD, Chairperson for CNA on the Move

January 15th, 2009
10:31 am

I feel for all the people that didn’t no how to cope and is coping to the best they can right now. Being a CNA that specialize in the Alzheimer’s Disease makes my heart go out for all of the caregivers. But I must say caregivers, lets take charge of our roles. Yes our parents need us and yes they are strange to us right now. But just take a moment and say I am the decision person in the family. Our parents had to be harsh sometimes but they still Love us. Sometimes they said no and we still lived. There is way to have the upmost respect and dignity for our older adults and still give direction. Asking for help to deal with, getting outside help, learning 101 ways to deal with the disease is a positive way to go. I have not had the pleasure to read the book of coping with rage but as a Direct Care Worker the Alzheimer Patients are my most happy people to care for. They are Grown Folks without a care in the world. Their World. But we must go into their world and enjoy them for who they are now. Sometimes i ealk in Ms. Blurs room and she calls me her brother. Well today I am her brother. Why confuse her more telling her I not when her disease is telling her I am. Well all she really wanted to talk about is the way they went fishing one day. I went along with the story and by the end she said Jennifer you are so fun to talk with. I just gave her a moment to reminse about her pass. We must learn more of the disease and how to cope but a lot of it is just excepting that we are now the leaders of our family.
Jennfer Hines point of view as a Certified Nursing Assitant that Cares for family and their older adults.

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Susan

January 16th, 2009
11:21 pm

I absolutely agree! My aged aunt has been in-patient for two years and all of a sudden they are trying to put her psychotic drugs. There is no medical reason for this sudden interest so I can only assume they want her in a stupor so they can provide less care / man hours per day on her care.

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jackie Holcomb

January 21st, 2009
3:14 pm

I have worked as a cna for a little over 15 years, and I really do love what I do. However there are many parts of my job that I don’t like. Like, the fact that although I am the primary provider of care in the nursing home my role as an employee is to be seen and not heard. The facility don’t really care about the needs of their patients. They only care that the patients are paying for a room.

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Desira

January 24th, 2009
7:44 am

I have been a cna for 23yrs and I love what do and I love nursing homes more than anything but moved to ga from IL,and it has been really bad can’t understand why they don’t pay anything here . so because of that I had to go to a hospital to get a job because the pay alittle bite more .I just think its really sad that you can’t do the job you really because of pay .

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Tasha Barner

January 26th, 2009
4:53 pm

Hi,

I am about to have that problem…..my mom and dad are still together but my dad is starting to have problems that my mom cant handle…I really was trying to find out how much to pay for the best care and that the employee can also take care of their needs and family….Help!!!!!!!!!!!!!!!!!!

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the most delicious

January 28th, 2009
9:49 am

we are certainly the most delicious generation! oh so tastey. a delicious sandwich.

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AtlantaNative

January 28th, 2009
9:57 am

That is how things have been for thousands of years.

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barbara mcvicker

January 28th, 2009
10:53 am

I am a national speaker, HR consultant, and author of “Stuck in the Middle…shared stories and tips for caregiving your elderly parents”. As I am speaking across the country, I find that adult children caregivers want 2 things—true life stories of other families and essential information. We need to be prepared for our parents aging and not work out of crisis. Let’s have those difficult conversations NOW!

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David

January 28th, 2009
11:34 am

The only thing I ask of my children in return for my dedicating my life to them while they were growing and maturing is to make good personal and financial decisions now, so they won’t be a burden on me when as I grow old and they won’t be a burden to their children as they grow old.

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Some kind of sandwich

January 28th, 2009
1:09 pm

I am a grandmother, raising a grandchild for the past 11 years and as of 6 months ago caring for my elderly mother…what kind of sandwich does that make me?

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MannyT

January 28th, 2009
1:14 pm

Some kind of sandwich

You are a double decker–like a club or big mac…just infinitely more valuable.

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Sandwicher

January 28th, 2009
1:51 pm

Perfectly said, David. That is the role of parenting to teach these skills. I am starting to take care of my elderly Mom as well as contribute to raising my niece and nephew. My Mom taught me well, but sorta planned for her own retirement. She has a pension, but does not drive and is still in good health. She loves my taxi. I am the one on call if she needs something. I am trying to teach my niece and nephew to be good people, have character/integrity, get good grades, achieve a good education and pick a field where they are recession proof and can make a good living and be good parents themselves. At 11 and 13, so far, so good as they are great kids making good grades. Mom always taught me, as a women, have your own game so you can take care of yourself and not depend on a man. I have great man, though, on my team! Also, save for the future as we all slow down and money and health are always needed as we get older.

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Sandra

January 28th, 2009
1:55 pm

As a Nurse and Home Care Provider, I see this all the time. Caregivers for the elderly must educate themselves on the resources available to assist them, and know when to bring in someone trained to help them.

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Julie Larson

February 5th, 2009
11:45 pm

I have been a CNA for 19yrs I have seen first hand on how others treat the patients. And to me there is no reason for anyone to be treated that way. I often wounder what was the whole reason why they became CNA’s LPN’s, and RN’s. Wasnt it to help those who can not help themselves. That is why I became a CNA and am pushing myself to become a RN. And it not about the money, ya it’s nice but money don’t save lives people who care like me do. And if that is the reason why people become CNA’s,LPN’s or RN’s then there in it from the start for all the wrong reasons. I love what I do and I love talking to every patient even if they can’t, they love it when I start talking to them and like there a child like an adult that is all they want to have someone who cares enough about them to just sit there long enouph to hear what they have to say and conversate with them. And you made a friend and thy know you care.

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Cherrie

February 8th, 2009
7:53 pm

I’ve cared for my elderly parents since I had to retire becaues of major health issues. My father died in 2004 at the age of 92 with a clear sharp mind. My mother is now 87 and is showing major signs of dementia, she’s on medication that isn’t helping, she has major rages that I can’t deal with. I’m very petite but she tries to hit me, curses me (she never used those words in her life), and I can do no right in anything according to her. I’m not married, my sister just passed away January 16 and we don’t have the money for a nursing home, nurse, assistant or anyone to help out. It’s just me and I’m trying to do my best and praying for God to give me greater patience. I feel like a total failure. I’ve spoken with her doctor, (who Mother hates) and there aren’t any other choices as far as medications . We live in a very rural area and there aren’t any specialist close by and because of my health problems I can’t drive long distances. I feel very alone and cry often, mainly at night because I can’t give my mother what she needs.

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Tanikka P.

February 12th, 2009
11:07 am

I am a care-giver for a 98 year old woman. I recieve 200 dollars a week and work 6 days a week. She can not get out of bed and I work alone with bathing and changing I prepare her meals and have conversations with her. I take public transportation and have to pay for my medications. I think that I should be payed more and have help with bathing and rotating her. The family doesn’t want to pay anymore money.

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lise

February 16th, 2009
11:11 pm

Hi,
Can someone answer the question about what a fair and reasonable wage would be for an elderly caregiver? $200/wk does not seem to be fair or sufficient… it doesn’t even seem to be minimum wage. We have found a wonderful gal to help my mom, and want to pay her what is right.
Please advise with what is going rate. Thanks.

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Debbie

February 17th, 2009
2:53 am

My dad has alz and my stepmom was soul caregiver and also didn’t want to bother her six stepchildren. My brother and I were from my dad’s first marriage, the other four were from his second marraige. None belong to her. The last month I found out she had mentioned nursing home to the four children that lived within blocks from them. We all not knowing how serious trouble she was in, although I knew my dad was verbally mean to her, I didn’t know he was physically until today. I got a phonecall this evening telling me that my dad tried to hurt her. I called my brother up there and he had taken her to his home last night and then to hospital. I called him because I wanted to ask her to come and stay with my husband and me and to thank her for taking care of my dad for 32 years and 17 of those he was ill. well my brother said they were coming to get her in a few minutes to take her to a mental institution. Don’t you be to late too. Please forgive me mom, your youngest daughter, that’s what I always called myself but I’m really the oldest.

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Carol Wilon

February 19th, 2009
1:45 pm

Hi: I have been employed in both Nursing Homes, Adult family Homes, since approximately 1994, and since 1999 am now self-employed as a Non Medical Private In-home Adult care-provider. Primarily, I do 24 hour care, for which my rate is 200.00 per 24 hr day. Occasionally, I will get a call for hourly work and on my days off, I may accept, usually 1-6 hours a day. My hourly rate is 16.00.
My rates include light personal on-hand care, homecare, cooking, grocery shopping, errands or just companionship. I’ts difficult to find 24 hour care-providers in some areas and my rate is 30.00 under what the local posted was last time I checked. I am a State registered Nurses Aid,with many years experience in my favor, and it seems to me that 12.00 an hour is not sufficient for a CNA but I realize some families cannot afford to pay more. Sometimes there is assistance through Senior Services somehow that maybe could supplement

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Ms. Mack

February 19th, 2009
1:49 pm

I have looked over a number the postings and I understand your questions about elderly care. I understand them because I’m private elderly caregiver and I hear these questions all the time with working for different families. I have done this type of work for a number of years now and I believe that you pay for what you get; but you should not be taken advantage of because you have no knowledge about the field of work. The caregiver should assess each job and the family as well as the person providing care should sit down and discuss the clients’ needs. Many care giving agents can charge anywhere from 15+ dollars per hours therefore sometime it is best the find a private caregiver in which you can trust with your family members. Private caregivers rate are most times lower and you get better care due to the fact the people are not just looking at it as a job. It’s their good name being put on the limb with clients. I can provide additional help as well as quality private care at reasonable rates. I can be reached at supercare101@yahoo.com and provide background and references. No obligation to hire

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Joy Johnston

February 23rd, 2009
12:02 pm

Caring.com has a good primer with resources for determining how much you should pay an in-home caregiver:
http://www.caring.com/questions/how-much-should-in-home-caregivers-get-paid-when-they-are

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Budgeting Tips

February 25th, 2009
1:23 pm

Nice post
A budget is a spending plan that includes everything you will spend money on. A good budget is a spending plan that includes everything you will spend money on and stays within your income.
Budgeting tips, information, advice, and resources to help you set up a successful budget and stay motivated.
Budgeting is something that many of us don’t like to consider as we think it will tie us down. But if you really stop and think about it, budgeting is simply a means of looking at your income and expenditure and deciding on what is most important to you.

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Old School

February 26th, 2009
8:44 pm

I’ve found this to be a great time to lose a little weight by cutting back on portion sizes, slowing down and savoring the flavors more. Recycling leftovers into some interesting soups is good too and most can be frozen for later use.
We’ve rediscovered the library and enjoy reading, checking out movies, and just running into folks we seldom see. It’s good to get out and about. We’ve even rediscovered window-shopping!

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vlscpa

February 26th, 2009
11:59 pm

My grandma, Beatrice, once shot a man, and I suspect that it was a money-saving measure in the long run. He must have deserved it, and she went on just fine without him.

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LIZ

February 27th, 2009
9:11 am

IM TAKING CARE OF 2 ELDERLY PEOPLE ONE IS 89 WITH BAD ARTHRITIS IN A WHEEL CHAIR THE OTHER IS 88 WITH 13 YEARS OF ALTIMERS,I LIVE WITH THESE PEOPLE WHAT SHOULD I GET PAID TO TAKE CARE OF THEM?

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Gail

March 4th, 2009
11:07 am

My husband passed away and I am now taking care of his parents. Both cannot walk without assistance and they need help in all aspects of their lives. I also work full time and have 2 sons in college and a teenage daughter. I am losing so much patience with them and I am not usually that kind of person. I cannot imagine having somebody in my life at this point and I feel very resentful. They will not let anybody take care of them but me or my kids…..NO assisted living or nursing home for them….they say. It is hard and I wish my husband were here to handle some of this mess.

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Carol D. O'Dell

March 4th, 2009
11:33 am

Like much of life, it’s how we perceive it that matters. I brought my mom into my home for the last almost three years of my life–and I was married and had three daughters–and I felt like I was the emotional barometer for everyone. As “mom,” I wanted to make sure everyone was doing okay–and yes, at times this took a toll on my marriage. Both my husband and I made sure we thought and acted as a team. He was my release. A big hug from him at the end of the day–lasting two or three minutes set so much right in my soul.
We created “couch time,” at the end of each day–we’d pitch in to help with my mom or the kids or chores, but at 10pm, our goal was to meet on the couch. We snuggle, watch tv, read or talk–and just knowing that we’d at least get a half hour before we’d doze off gave us something to look forward to.

Hope this helps–I know firsthand what a challenge it is–and perceiving our marriage as a haven of safety and release can make a big difference.

~Carol O’Dell
Author, Mothering Mother: A Daughter’s Humorous and Heartbreaking Memoir
http://www.mothering-mother.com

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Pam Bonner

March 4th, 2009
11:52 am

My mother, who lived 2 1/2 hours from us, fought cancer for 4 1/2 years. I spent many, many days there … one time I was there for 8 weeks coming home only for 4 days in that time period. My husband and my teen-age sons were wonderfully supportive and did everything they could to help me be able to care for my mom. Any feelings of guilt (and there were some on occassion) were self imposed. They loved my mom deeply and wanted her to receive the most loving care possible. Because they believed I was the person who could best provide that care, we were in it as a family. It created a deeper love for my husband and an appreciation for what a wonderful gift they gave me … the gift of helping my mom to live until she died.

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YANCY

March 4th, 2009
12:07 pm

I took care of my elderly father until he died and I have a husband and at the time a young daughter as well.It was hard and I had little or no help but my husband stood by me and did what he could for my father. It’s not a fun situation to be in.

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Frustrated

March 4th, 2009
2:34 pm

my husband’s mother is very needy. she has no major medical problems and is very active in her mid 80’s and she has a lot of family and friends around some living right next to her but she is constantly on the phone to everyone telling them how lonely she is and is very demanding. the adult children cannot go on vacations with their spouses or children as she makes everyone feel guilty and says she wishes she could go although most of the family is with her 24/7. she has caused a lot of problems with the spouses and in the marriage of her children with her demands and meanness. she uses her medications which are few to control the family, she will go off them and then demand they come and help her and she won’t listen to her doctors. its very frustrating for the adult children and their spouses and even the grandchildren are feeling the pressure to visit more than they already do which is quite often. we used to go to her house which is at least a two hour drive for many of us almost every week but it still wasn’t enough for her and she would complain when we left or if we wanted to spend time with our our children and spouses famlies. its gotten to the point that many of us make up excuses to not see her because whenever we do she whines and complains and wants us to spend the night or come back the next weekend. us adult children would really like some time with our own children and spouses but she calls constantly and complains about being alone although there is some one with her everyday. she does not have alzeheimers or dementia so that is not the issue. i think its about control.

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Pamela

March 4th, 2009
2:36 pm

I am presently caring my mother who has lived with us for almost 10 years. She has recently become ill and four of my younger sisters (I have 5) have decided to make it a competition to see who loves her the most. They want to visit and they cry and baby her, but they don’t stick around for the hard stuff and never have. Prior to her being sick, they would not even call her from Friday night until Monday morning. Without the support of my husband, I couldn’t handle this. This is the hardest situation I have ever been in.

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steve

March 4th, 2009
3:16 pm

my mother is 80 with alzheimers and is living with us also my daughter in law and 2yr and 4yr old grandsons live with us ,due to my sons army deployment{101st airborne]we both work and have been married for 32tears. my sisters live nearby and help with getting mom to the doctor. my wife ang I try to keep things as normal as possible between us. but it is still very difficult,our children were both married and we were empty nesters for about two years,this has all developed over the last 6 months, so I really can;t give any good advice,we are still learning. good luck to all.

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Macj, Jr.

March 4th, 2009
4:07 pm

I have heard several stories about how caregiving has taken a toll on marriages, jobs and finances. No matter how easy one may think it is, it turns out to be a burden they later realize is a life changing “full-time job”. With the families that my family has helped, you would not realize the amount of thanks that we get for the things that we do. Not only offering 24hr caregiving service, but also the adult day-care and respite care that we offer just gives a well deserved “break” to the family caregivers that need it. I know it is very difficult for the families that do take the time to care for their loved ones and you all must know that it does not go unnoticed in the eyes of God and in the eyes of your peers. My family built an assisted living facility here in Atlanta about 8 years ago. The inspiration for us building this facility was my great Aunt who at the time was 88. We were blessed with the opportunity to do something like this and offer our services to the Atlanta community. Please feel free to visit our website of call with an general questions.

Mack, Jr
http://www.summersetalc.com
404-443-5444

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Peg

March 4th, 2009
5:01 pm

YES! Murmuring, stumbling, crying, deaf and blind one minute, incomprehensible and uncomprehending, crying for help; yet as soon as the parameds arrived, my mother sat up, straightened her skirt, tapped her hair into shape and welcomed them in for tea. No, nothing was wrong. No, she had no idea why her daughter would “call the police.” ,Yes, they stared at me – now in a helpless teary rage – and wondered whether to take me in for observation. Yes, after I closed the door, my mother began to laugh. Oh yes. Manipulation is as alive and well in Planet Mother as it always was. How do we know when she sincerely needs help? A battery of tests is scheduled with a gerontologist (geriatrician?) for next week and she’s also being tested by a geriatric LCSW to see if she needs a geriatric psychiatrist and meds. Thanks, Jacqueline, for your essay. It’s not very pretty, is it?

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SYNERGY HomeCare

March 8th, 2009
2:37 pm

Great post and great prompt (to talk with your parents about care issues). It is required and simply, put our responsibility as children. After all, they took care of us and raised us while they worked. We need to do the same. Start now, before medical conditions or aging advances to where something needs to be done, that will make it easier. And remember there are MANY options out there from assisted living facilities, nursing homes, senior living homes and home care. All of these options can assist with daily living activites.

http://www.synergyhomecare.typepad.com

SYNERGY HomeCare-EastValley

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steve

March 9th, 2009
9:05 am

with a dementia patient, you must take charge of their medications,when my mom moved in with me I found that she could not always remember if or when she had taken her meds. also educate yourself on what they are taking as well as side effects and drug interactions, don’t count on the doctor to do this for you. mom was placed on the drug namenda, which caused her to start having falls on an almost daily basis, also she began to have hallucinations and even more confusion than before along with a noticeable difficulty walking. after some research on my own we found a new doctor and removed her from namenda, the improvement was amazing, within a few days she was walking normally with no falls and is now more conversant and active. so educate yourself on the meds asap,don’t hesitate to change doctors,especially if the current doc is not a geriatric doctor.

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steve

March 9th, 2009
9:12 am

finally ,a column that educates people on what is a very important issue,the demand is only get bigger as us boomers, now 50 or so start to deal with our aging parents. thank you ,keep it going

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steve

March 9th, 2009
1:16 pm

it’s also very important to address legal issues while your parent still has the cognitive ability to understand them,specifically the Georgia advance health care directive ,which gives the designated person the legal authority to make health care decisions in the event your parent is unable to. this also contains a living will. also needed is a durable power of attorney which gives the designated person the legal rights to execute any and all legal matters that your parent has the right to do should they become unable to do this for themselves. I had an elder lawyer provide both of these documents for 250 dollars.

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steve

March 9th, 2009
1:36 pm

Ihave my 80 yr. old mom ,a daughter-in-law and 2 grandsons living with me,that makes us a hamburger.

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Nancy

March 12th, 2009
8:34 pm

We converted a den into a sitting room and then added a wheel-chair accessible bedroom and bathroom for my 92 year old mother. The bed and bath are separated from the rest of the house by the den, which makes it more private for everyone. Mom likes to be able to look outside, so we put 2 windows in her bedroom that look out into the backyard. We try to keep a birdhouse or birdbath and flowers so that she can see activity out her windows.

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Nancy

March 12th, 2009
8:53 pm

We took the money my mother would have spent in an assisted living facility and used it to add onto our home for my mother. Once all her money was gone, she was eligible for medicaid which pays for her medical bills as well as in home personal care assistance.

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Julia

March 16th, 2009
1:09 pm

I recently took a job as a Wellness Director in a assisted living facility and quit after 3 weeks. In the facility I was in, the maintenance staff had been let go 8 months prior, the housekeeping staff was terminated 4 months prior, almost all the residents were chemically restrained and on top of the monthly room and board the residents were “nickel and dimed” for what should be considered basic care. It is a sad state for the elderly in the state of Ga.
,

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Katey

March 19th, 2009
10:08 am

There is an entire exhibit at the Atlanta Home Show this weekend (March 20-22) on this very topic. It is called Home for the Ages. Bring your parents with you to help keep them involved (adults 65+ don’t have to pay for a ticket to the show).

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Nicky

March 22nd, 2009
10:21 pm

I work 2 jobs in home health care, one is with Volenteers of America of North Alabama i get 7.50 hr and work like 24-30 hrs a wk only on week ends and i just started working for my former bosses mother, she is 95 yrs old, sharp as a wistle, she is in a wheel chair but can walk with the a walker. Now, I know for sure after reading some of the comments of that i’m definatly being takin for a ride with my pay. I was told that I would have to put her to bed and maybe once in a while prepare her dinner and clean some dishes that might be there, I’ve worked there for one week and is totally exhausted, i came everyday around 6-7 pm. and not only prepared her dinner but cooked and cleaned the whole kitchen for the family. Then i have to wait up for her, cause she doesn’t go to bed any earlier than 12 midnight, so by time i put her to bed ( because she has a lot of rituals before i actually leave her side) and i finally get into my bed it’s way after 2 am. I leave at 8 in the morning when the nurse comes in. I work for 14 hrs and she pays me only 25 dollars a day!! yes! .. I SAID 25 DOLLARS FOR THE 14 HRS!! she says i’m not doin much cause i’m just puttin her to bed! but it’s alot more then just puttin her in the bed… so i’m goin to tell her i can’t do this anymore. i’ve had at least 3 yrs experience so i deserve better pay!!

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Cecillia

March 30th, 2009
2:50 pm

Julia or anyone out there. I want to take my Medical Assisting students on a field trip to the worst nursing home in Atlanta. They should also have a disastourus ALZHEM unit. I want my students to see first hand what they must not do. Who do you recommend for a tour and for a couple of hours so my students can work with some patients as a learning experience. Send me an e-mail with your suggestions. cshailey@yahoo.com

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[...] provide caregiving services for an afternoon, or do a chore or errand for the caregiver. Research support services in the caregiver’s area. Of course, being a good listener is also a great [...]

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catrina

April 8th, 2009
8:09 pm

Is a certified caregiver the same as a nursing assistant?

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Margie Morton

April 13th, 2009
7:57 am

My mother has experienced this condition for years. She is now 88, and has been diagnosed with TIA’s so we were not so alarmed when she started having mild hallucinations (seeing things that were not there and then relating to the family that she was aware that these visions were not real but were “real” when they appeared to her. She was also experiencing unexplained nausea and more pronounced weakness and fatique. She complained to extreme pain in her legs (primarily thighs). These symptoms seemed to me to be a part of aging because she had been seen by a physician within the last 3 weeks and was given a B12 shot and complete exam except for no urinalysis. My daughter-in-law is a physical therapist who has had several elderly clients immediately shared her thoughts that these symptoms could easily be from a urinary tract infection. When I described her symptoms to the “phone nurse” at her physician’s office, I was told to bring her in. Bottom line…she did have an infection and has been on antibiotics for 3-4 days. Her symptoms are already diminishing. My adivice, don’t assume that condtions are “just age-related” as we are often told. Do the research and take action.

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Ebony O'Connell

April 13th, 2009
1:17 pm

I believe 12 dollars an hours is good to start out with depending on the assistance needed. If you need someone, you can always call me. My number is 317-345-6159.

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Annie

April 18th, 2009
7:05 pm

My heart is broken to see my beautiful, spunky Mother so vulnerable. This has happened so suddenly within 3 months. She has gone from being independent, having a normal conversation, walking – albeit it slowly to being immobile, confused, incontinent. I think it’s vascular dementia but the Doctors don’t seem to know or care, saying they can only tell postmortem. They told me for a while it was just a UTI. For a long time, I wondered was it depression and the nursing home environment to which she was discharged after hospital. As he continued to decline rapidly and become more helpless, it became more and more difficult to contemplate having her home but it was never meant to be permanent. Thank God, she knows me, smiles and kisses me. She constantly tells me she loves me. She is in a nursing home but I spend several hours a day there. it is a nice place but there is no stimulation and every time I go, she needs changing. I go to make sure she is hydrated, clean and stimulated. But I know that it is putting a strain on my health, well being, work and marriage but I cannot cope otherwise. I keep hoping for a miracle that one day I will walk in there and she will say, “what am I doing here – let’s go home”. I’ve brought pictures of her during the various stages of her life in to show to staff – I want to reinforce that she was – is – a special person with a personality, spirit and soul. When I see her clutching her teddy bear for comfort, my heart breaks. When I hear the staff talking baby talk to her, even though they mean well, it angers me. When I see the other residents ignoring her as she cannot participate in a conversation, it makes me want to cry. I miss her. I miss our chats. I miss her company. I miss going shopping with her. I just miss her. I look at her and see glimpses of the person she was. I wonder what is going on in her head. I brought her out to her usual hairdresser last week. I try to bring her out for drives but that’s become difficult since she became immboile and incontinent. If only she could stand, it would make such a difference. Thank God, I can still hug her and tell her I love her. She is still so loving and asks am I hungry when I visit. It just breaks my heart. My beautful mother still so loving and caring, worrying about me. God bless her. I hate the nursing home – but know that the day I stop going there, is the day my mother dies. One one hand, I don’t want her to suffer and think in many ways she’d be better gone but I cannot visualise life without her. I should be grateful to God for sparing her to me for 84 years but I’m angry that she should be given this scourge. I lost my father young and my only baby when I was pregant. Life sucks sometimes – I feel so sad inside. Don’t mind me – just having a bad day. God bless you all.

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lauren

April 20th, 2009
3:52 pm

I experienced the same problem with my dad back in 2004. He is doing fine now, it took months for him to adjust to using incontinence. He was embassased and di dnot like talking about his problem. After finding the right fit, brand, etc. he was ok. Home Delivery Medical became my online source for everything he needed. They have customer service people ready to help. They will also give you a few samples. http://www.homedeliverymedical.com thanks, lauren

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Carolyn

April 20th, 2009
8:19 pm

I am a CNA and work for a private family careing for their elderly parents. I started at $10 per hour and now make $12.50 per hour. It really depends on how much experiance they have and what certifications they have. A caregiver’s pay for example normaly is between $7 -$10 per hour. I know other CNAs that recieve $15 to $20 per hour.

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Melodie Kinzel

April 23rd, 2009
8:58 pm

Enter your comments here

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Lin

April 25th, 2009
2:32 pm

I am a CNA with 9yrs experience. I do both live in and 12hr care. For live in I charge 6.75 to 10.00 per hour per person, level of care depends on pay rate,and I don’t work weekends.I also have a min of 4 days.
For 12 hour shifts I charge 12.00 to 18.00 per hour based on level of care required,and require a min of 4 days/week.I charge a 100.00 holiday fee for federal holidays.I charge an overage fee for anything over 60 hours per week, additional 2.00/ hour. I have call in rates for weekend and holidays as well.As for work that I do, if I know how to do it I will. I utilize any discount I can get to save my vlients money.
I take them where ever they would like, I have even traveled out of state with a client.I cook REAL food to their diet requirements. I am not trying to get rich, just pay the bills and have money in my savings. My biggest complaint is familt who says room and board is included with 24 hour care, but when I tell them I can break my lease, that my boyfriend lives with me and that I have a great dane, when can we move in? They looked confused! Live in care means being there 24 hours a day other wise – would go home at night. I live in Phoenix AZ btw. Hope this helps everyone.

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Alysia Parra

April 29th, 2009
1:53 pm

Can somebody answer my question? I live in California and I take take of a 96 years old lady. She has Dementia and I have to bathe, cook, clean,and I live in how much is the rate for 24 hour care.

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Joyce

May 10th, 2009
7:30 pm

I am a registered nurse but mostly a daughter who loves her mother. I have managed to keep my now 80 year old mom at home with the assistance of my elderly aunt and my children since my mom broke her arm 2 years ago. She has numerous physical problems and has become more debilitated as time as gone by though up til now we have weathered all the storms. With a fall two weeks ago resulting in a fractured hip, her condition is now essentially bedridden. In order to get rehab services at a pace I hoped she could handle, five days ago I placed her in a nursing rehab facility that was highly recommended for its rehab services. On day 3 I found that her surgery dressing had not been changed for 2 days and she was developing 2 decubiti. When the nurse came in to change the dressing, she left a pair of sharp pointed sissors in my mom’s bed and left the room. I found the sissors when I was positioning my mom. That night, she was overdosed on narcotics and when I came to see her the next day noticed that she was becoming less alert,unable to speak, and her breathing was more labored. I had an ambulance called and my mom was admitted to the hopsital with drug overdose, congestive heart failure, 2 decubiti and an INR (blood thinness level) of 4 (therapeutic level is 2-3). She remains in the hospital as I research ratings of local nursing facilities knowing that all are likely to give inferior care. I am at a total loss of what to do at this point. I will not take my mom back to that facility and I have lost hope that my mom will ever walk again. My aunt can’t continue to help with my mom as she is and I, like so many others, have to work regardless of how much we want to take care of our parents. I know I will have to place my mother in another nursing home but just at the thoughts of the care she will receive makes me sick. I know how difficult the work is for the aides, but in my case, the most detrimental care came from the nurses. There is no excuse for overdosing an elderly patient. If you are a nurse who works with the elderly, you should know about the effects of medications on those with debilitating frail physical conditions. To me, and to you if it had been your parent, there is no excuse. Had I not went to see my mom when I did she would be dead from a drug overdose.

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Courtney

June 6th, 2009
6:56 am

New Memoir Details Affects of Alzheimer’s on Family
Daughter Recounts Time Spent Caring for Parents with Alzheimer’s in Heartfelt New Book

In her new collection of memoirs, 36 Days Apart: A memoir of a daughter, her parents and the Beast named – Alzheimer’s: A story of Life, Love and Death (published by AuthorHouse), Deborah Ann Tornillo chronicles the time spent taking care of her mother and father, both of whom were diagnosed with Alzheimer’s in February 2006.

“I didn’t know when I would tell this story, I just knew I would,” Tornillo writes. “Both my mother and father had Alzheimer’s; my Mom was further along in the disease process than my Dad. It was an incredible journey spending the last year and a half of their life with them, slowly watching the disease take its toll.”

36 Days Apart recounts this painful, enlightening journey, and Tornillo writes candidly about the struggles and fears she faced as her parents’ caregiver. When the diagnosis came in 2006, Tornillo bravely faced the reality that she would need to take care of them full-time. At first, this entailed monthly flights back and forth to her home state, but it quickly became apparent that the Alzheimer’s was progressing in both parents much more quickly than first anticipated.

As their disease progressed, Tornillo was faced with the difficult task of learning how to be a parent to her own parents. Through the year and a half of caring for them she extensively researched Alzheimer’s in order to provide the best care possible, all the while knowing that the disease would eventually win in the end. She found herself saying goodbye to her father first, but little did she know that her mother would pass away just 36 days later.

36 Days Apart gives an honest, unflinching look at the realities of caring for and losing loved ones to Alzheimer’s. Tornillo gives the reader an inside look into the day-to-day life she faced during her heartbreaking, difficult time. “The two most important things I learned from my parents as we traveled this road together was how to stay strong in faith and never lose compassion for others or myself,” she writes. “I was blessed to have learned from them their wisdom of life and death. I have faith that as you read my parent’s story you will gain the strength and wisdom needed to guide you.”

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gracia tanger

June 10th, 2009
1:47 pm

hi, i’ve been working as a caregiver 2,5 yrs and my agency not pay me right seen this year, any body know where i can report this issue?

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Josephine Muraviou

July 8th, 2009
3:47 pm

I have been taking care of the elderly for the last 20 yrs. or so. I was a C.N.A for years. It’s not just about being a C.N.A I have seen very bad ones at the one & only Nursing that I worked at for many years.
They were there just for the job, they didn’t really care about the residents. You have to love what you are doing otherwise you should get a job at a Department store.
I am retired now, I am taking care of a woman who ambulates with a walker. The family wants me to spend the night once inawhile and I don’t know what I should charge. She is very incontinent and I have to bathe her.

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Lupita

July 13th, 2009
2:56 pm

I am looking for a caregiver for my husband. He is at home disable. He takes orders well. The maximum I can pay is $15/per hour. I need somebody at home from 6:45a.m. t 5:p.m. Monday-to-Friday. This is the time I am at work. The job will be long term. If you are interested, your reply will be very much appreciated. You may call me at 949-349-3411

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nadia

July 19th, 2009
7:22 pm

Hi i was recently working with a private family where i took care of their mom who is about 73 yrs old, she has chf, depnia, and it was 24 hrs for 2 days. I loved working there but what i didnt like is that i only got paid 125 per day. thats why i called the guy and told him that i couldnt keep going. the reason i did this was because i wanted experience since i am going to become a nurse when i get into the nursing program. do you think i did wrong in leaving the job? i had to cook, give her meds, clean, getting her out of bed, and take her to the bathroom. she also had mrsa, but that didnt bother me. I just thought that 125 was not enough for 24 hrs.

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Jo

July 20th, 2009
7:35 pm

Wow! Somebody’s grandmother shot a man over finances? Hopefully she didn’t kill him. Speaking of finances, I found switching from a contract to a prepaid cell phone plan is saving me a bundle. I hear lots of talk about Metro PCS and TracFone’s new StraightTalk with unlimited everything for $45 a month, but Net10 suits my purposes. I paid around $30 for a good phone, I pay a flat rate of 10 cents a minute for calls all over the nation, and text messaging is 5 cents a minute, though I admit I don’t text. I have lots of friends abroad so I’m thrilled with Net10’s 100 international destinations for the same price as a local call. Cutting back on phone bills is one way to save. Every penny counts.

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Kaye - SandwichINK

August 2nd, 2009
12:30 am

Good info! I also appreciated the comment by Margie Morton. We’ve dealt with urinary tract infections with adult kids who were pregnant and know how much grief they can cause, but I would never have thought of them causing these kinds of problems as well. Very good to know that! Thank you. :)

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Shannon

August 2nd, 2009
2:56 pm

I went to live with my grandmother over a year ago to help out,and she was fine..then. I did notice some memory loss,but I did not think at that time that it was alzheimer’s or dementia. Then she started being more paranoid and anxious. I even witnessed her trying to attack people for no reason. She even hit me one day. I was only trying to stop her from hitting my dog,(the dog was doing nothing). Sometimes I just think that her true colors are coming out,other times I just think that it is the disease. I wish she was the grandmother I once knew.

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Shannon

August 2nd, 2009
3:08 pm

I went to go live with my grandmother over a year ago,she was fine..then. I did notice some memory loss,but I did not think that it was Alzheimer’s or dementia. She then slowly started becoming more paranoid and anxious. She became combative and cursing at people for no reason. She was not like that before. She even hit me. My family tried to get her help so she would not have to leave her house. We had a home health agency come out and she ran them off saying she was fine and was not sick in any way. She always told us not to put her in a nursing home,but that might be her only option or an assisted living center. I just wish she was the grandmother I once knew.

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evan

August 3rd, 2009
2:17 pm

my grandfather has dementia. he’s 90 years old. about a month ago he fell while going to the bathroom during the night, and a couple other falls during the day due to dehydration. he was in the hospital for a couple weeks and then sent to a convelescence home for another couple of weeks. and he’s home and is required to use a walker.
this is where it gets difficult. my grandfather is the most stubborn man i have ever met in my entire life. that is apart of his personality and it makes it more difficulty when it ties into his dementia. we feed him all throughout the day. 5 minutes after he is fed, he asks someone “i need to eat, i haven’t eaten all day.” when told he was fed, he immediately yells out “i never ate a damn thing all day!” followed by accusing everyone of being a liar and name calling. this has been going on for a several years and getting worse. his memory is becoming and issue. he’s lived in his house for over 60 years, and he doesn’t believe it is even his house. he thinks he’s living in someone elses household and continueously asks when he can go home? where he sleeps? where i sleep? where his wife is (she passes away 5 years ago)? where his brothers are (they’ve all passed away over the years)? where his mother and father are (they passed away 30 years ago)?
now his leg is not fully healed, and he looks at his walker and thinks its a piece of furniture and is constantly thinking he has to put it somewhere, so he leaves it in his bedroom, or the kitchen, or the living room, and he’s walking around the house without his walker.
his attitude towards his family is also a difficult matter. he is constantly forgetting stuff, and automatically if he can’t recall something during the day, its not because he can’t remember it, its because someone is lying to him. not only that, but he gets angry and yells out mean things to his family, calling us all worthless and that he doesn’t need any of us is his life, when he clearly cannot survive without us for no more than a week. he is my grandfather and i love him, but it becomes a burden because i work during the week and am still in school, my other brother still living at home doesn’t spend much time at home, and my father can’t leave the house for a second, even to start working again, so money is tight as well. we’re not only worried that he might fall again, but we’re worried for his life. he does not even know how old he is. he told me he thinks he’s in his 40’s. some of his falls were because he climbed on a chair to clean the top fo the refirgerator and he lost his balance and fell off the chair. his balance is what worries us all because he tends to wobble when he walks, and he’s leaving his walker everywhere, and he’s getting angry with everyone because we tell he forgets things, but is completely unaware of any of all this

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CindyLee188

August 10th, 2009
1:17 pm

This is a great article, budgeting tips are really helpful in these tough economic times. While creating my family’s budget plan this month, I realized how much money was being wasted into our cell phone contract. So I did some research on prepaid cell phones and found that this company called Straight Talk really saves us a bundle, plus it has unlimited nationwide coverage which is perfect for my husband’s job. If anyone has any other great budgeting tips, it would be greatly appreciated!

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The Assisted Living Federation of America

August 19th, 2009
11:47 am

The Assisted Living Federation of America has just added your blog to its’ blog roll on ALFA Re:source (http://alfa-resource.org/)! We hope that you read our blog as well!

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lori

August 27th, 2009
5:49 pm

If these are your loved ones, I would definitely heed the advice of “you get what you pay for”. And highly recommend a private caregiver versus a company that sends different people out.

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Linda Allen

August 28th, 2009
2:13 pm

I m deaf and live on SSI and not enough income ,,,I do have medicaid they pay for teeth pull out and i have no problem with that but medicaid wont pay for dentures,,,I need full denture for top and bottom ,,,wonder if u can help me with dental cost ?? my dentist cost 1,300 for two full denture and I dont have money for it ,,,,Can u help pay for it ?? i desperately need help and I must have teeth to eat good ,,,,i cant live without my teeth and I m desperately need someone help me if u can tell me who will help from charity thanks ,,,email me Dollydale@aol.com

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Bernard Woods - Augusta

October 11th, 2009
9:33 pm

I need to report a substandard facility in East Point, GA. Someone please give me some insight on handling this matter.

Bernard

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Suzanne

October 21st, 2009
11:32 pm

My mother was placed in a nursing home about three months ago from a hospital stay percipitate by continued falling and memory loss. She is diagnosed with dementia. At first she was fairly calm, but now she has full rage all directed at me. She thinks she can care for herself and that I have placed her there because I don’t want to take care of her. First of all, I have a job and secondly, I did take care of her for six years in a little house I bought and placed in my yard so she would be near by. I am trying to let it go as my husband tells me to and realize where it is coming from, but it is very hard. I believe I will stay away for a while to see if the rage will lessen. I don’t know what else to do. She threatens violence to me when I go and even threatened to kill me. It is very draining.

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jigs

November 4th, 2009
3:21 pm

Rates vary depending on the type of care that’s needed and the patient’s situation.
-Some patients are mobile & workload isn’t heavy at all. (less $)

-Some patients are heavy-set, where only a handful of caregivers are able to do the job, I’ve had instances where we employed 2 caregivers for 1 patient, 24 hours/day, 7 days a week. (more $)

-Some patients have Alzheimer’s disease and never sleep. because of the risk of the patient disappearing, shifting caregiving services are usually needed to cover 24 hours of care. It is not unusual that these patients become violent towards the caregivers and even families. Therefore you will need to hire someone with certifications regarding Alzheimer Patient Care. (more $)

-Some patients need driving caregivers where the caregiver needs to be reimbursed for the mileage/fuel that they spend, using their own car. (more $)

If you are interested in learning more, contact me. thanks!

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mike

November 8th, 2009
1:04 pm

My 75 year old dad, who is pretty much physically active, has become (sporadic) verbal abusive towards my mother and accuses her of having affairs with other men. They have been married 55 years. This is clearly not his normal personality nor is there any signs of truth to the stories. The verbal abuse is obviously a controlling means and has me perplexed. Any suggestions or help, I don’t know which way to turn.

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Darcy

November 12th, 2009
12:46 pm

Is there anyone or a service in Atlanta that could help me and my dad. He has Alzheimer’s and since I work full time I don’t have time to take him to see his pals during the week.
Thanks,

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